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  1. InitialConditions

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    With NICE's reputation being questioned, I have gone nuclear. Please retweet etc. No one else seems interested in telling this story.
  2. InitialConditions

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Yep, important to warn of potential harms. I've not seen much of that. I believe my trigger was in part erroneously being prescribed amoxicillin for what was likely a trivial viral illness. I still believe antibiotic use might be playing a large role in onset of ME in some patients.
  3. InitialConditions

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Nope. It's all presented as fact. Lot's of claims of "this is why" and "this is how to stop that". I have called them out on this on Twitter. EDIT: e.g., here on PEM: I'm afraid they are.
  4. InitialConditions

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    Remission Biome is essentially PhoenixRising on steroids. There's a lot of nonsense being pushed. They seem to just ingest any rudimentary science and based on that push extremely expensive interventions that 95% of patients would never be able to afford.
  5. InitialConditions

    Opinion The long wait for a breakthrough in chronic fatigue syndrome, Lloyd and van der Meer, BMJ, 2015

    Well, no, but based on the title I didn't expect just CBT/GET peddling.
  6. InitialConditions

    Opinion The long wait for a breakthrough in chronic fatigue syndrome, Lloyd and van der Meer, BMJ, 2015

    I'm getting a security warning from that site. I did try other sci hub sites but they were down. Can you post the PDF? Thanks.
  7. InitialConditions

    Opinion The long wait for a breakthrough in chronic fatigue syndrome, Lloyd and van der Meer, BMJ, 2015

    Can anyone provide a PDF of this BMJ editorial. Thanks. https://www.bmj.com/content/350/bmj.h2087.full
  8. InitialConditions

    Videos on PEM and other ME/CFS topics - Bateman Horne Center

    I just started this video and the first claim—that delayed onset muscle soreness (DOMS) after a workout is caused (primarily) by lactic acid—seems to have been debunked a while back.
  9. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    TV docs looks very different from stuff like Voices From The Shadows. There are production companies who do this day-in-day-out for TV and know the format and recipe. It could be an idea to pitch to some of them who have made docs on similar topics before. I don't know enough about how the...
  10. InitialConditions

    Article: Science: Is exercise actually good for the brain?

    This is the second time we've seen this in a week. What is going on?
  11. InitialConditions

    UK: New £14 million investment targets rare diseases

    No, that's why I used quotation marks!
  12. InitialConditions

    UK: New £14 million investment targets rare diseases

    Suddenly ME/CFS is no longer 'a rare disease'.
  13. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Are you able to ask your friend for further details i.e., how they know about said programme?
  14. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    I agree. I highly doubt that a recent Panorama episode was made without anyone in the UK world of ME knowing about it. Please don't take my skepticism personally. Happy to rescind it on any evidence of said programme!
  15. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Thanks for all your comments so far. Remember this is just a (potential) story pitch, and I imagine that generally once a story is pitched via email (for example) that person is not involved in whatever is produced. So I have not considered potential interviewees etc, because it's highly...
  16. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    Yes, this could be an alternative story/angle that would perhaps negate the need to dive into the controversy about PACE etc.
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