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From an email this morning: BACME 2023 National Services Survey launched BACME have recently launched our 2023 National Services Survey. We hold a database of NHS specialist ME/CFS services, the majority of whom are featured on the BACME services map, and they have all been sent an invitation...

I agree. His tweets are often quite strange. Also, you can't just up sticks and move a research group, unless you have won a transferrable grant or fellowship, which I don't think he has. He's probably fed up with chasing grant money, as most early-career researchers are.

I suspect it's still in peer review.

I tweeted this yesterday, and I'm sharing because I think it's important. @Andy would you or someone from DecodeME be able to raise this with the MEA?

He is deeply confused, and his arguments can be refuted in seconds, as they have been here and on Twitter. Amazing this man was a professor of evidence-based medicine. He is obsessed with speculation and hypothesis.

It was a case in a young boy—headaches and tiredness since third(!) covid infection. A link with exertion was made, as his Mum said his headaches were worse after he's been to football. Doctor said this fits with long covid, and very briefly brought up the concept of pacing.

According to the Freeview online TV guide, there is case of long covid on tonight's episode of GPs: Behind Closed Doors at 7pm on Channel 5 (UK)

Yes, they were active in Forward ME. There are a few smaller charities for which it is not exactly clear how active they are, if at all. I'm glad Remember have made their closure known.

Canada really seems to be a hotbed for this sort of ethnographic research crap.

o_O

;)

Also suprised to see this paper only had one reviewer. I don't think one reviewer is ever sufficient.

o_O [A little in-joke I have with myself...] Madness that no co-author, reviewer, editor, or typesetter caught this, especially as it's in the abstract.

I think Dr Myhill revels in it. I think she fancies herself as a sort of renegade, and she knows she has enough patients and other business interests to continue having a good income, even if she can't practise for a while.

I think he's done a good job.

Another good video, Adam. Do you get someone in to do the narration?

Yep. I've found the majority of patients underestimate the effect that natural fluctuations have, and sometimes they don't consider it at all. I think a patient is more likely to want to try a new intervention when they are in a crash — feeling desperate etc. Coming out of a crash would likely...

Also, what's the latest with Jared Younger's LDN for ME trial?

I took it briefly but had no real change (except vivid dreams). It may not have been long enough. I can't remember now why I chose to stop. I tweeted recently about what I consider undue hype around LDN. While it may seem harsh — and there are people in the Facebook group I mention who have...

I'm not a fan of the butterfly logo. It seems a little old-fashioned and a bit too 'cutesy' if that's the right word.