Search results

Wow. Go Scotland!

Actually I’ve changed my mind. I think I want the app. I can think of nothing more worthwhile than regularly messaging questions and queries to the OT who is tasked with doing replies.

Will we be doing a full cultural appropriation trip then? Chuck in bit of yoga and mindfulness? Maybe some stoicism and Epicureanism?

I think the actual Mediterranean Diet includes white wine in low to moderate quantities. The benefits aren’t realised if you exclude the booze. This is my new push-back on it being shoved down my throat. My previous “but before I eat I don’t swim in the med, and after I don’t walk up any hills...

I believe it ties in with the new “neighbourhood hubs” of the NHS 10 year plan recently announced by Streeting. They haven’t been set up yet, so as per usual, don't hold your breath. Yes, our care will be from a service which was only invented last week.

I love this Jellybabykid. Can we use it? We could send this to our MPs, the APPG, the charities, the press? (Not identifying you, just all repeating your words)

God forbid that the needy, who need help, should get help when they ask for it, from those in a position to help.

“Lack of energy” to make/attend appointments seems really odd to me. Making an appointment isn’t that difficult, whereas getting an appointment is a different matter which, yes, I mentally and emotionally find hard. Not due to lack of energy as such, but that the energy cost is too great (aka...

I have since started saying”my carer can’t get here until afternoon” which makes a world of difference. It may be you who told me that trick!

I dunno, I once asked for an afternoon appointment at the GP and the receptionist said no. I requested as a reasonable adjustment under the equalise act and she told me “the duty dr says not being able to get out of bed until the afternoon isn’t actually a disability” hmm.

Could people just wear a wearable and the data be fed into a bot/python script? I’m just thinking about lessening the burden whilst maximising the data. Personally I’ve been struggling lately with the difference between being active but in pain and forcing myself, vs not being active but in...

Surely they don’t want ppl in hospital for 6+ months though? Getting them better and moved on is in their interest isn’t it? I’d have thought “long term ers” would be highlighted on reports, questions asked why they’re still there?

This is the second person in 2 days, why is this so difficult? I believe we are up against a dangerous intersection of poor nursing and care meets meh ME isn’t real/this isn’t ME

We need an NHS ME/CFS tzar. And the majority of interested applicants need not apply.

I have started to explain fatigue/increased symptoms. When I am fatigued I feel nauseous, or unsteady, or breathless, or I shake involuntarily.

My view of TfME is that because of the diplomatic background, they’re very diplomatic. Which is fine, that’s their choice. A lot of us would like to see some undiplomatic push-back against this rubbish.

I had a local GP. One of the reasons I chose it was that it was close, on a main rd, could take a bus, space for taxi drop-off. Never got an appointment there. They had a consortium of practices and I could only ever be seen at a different practice which was impossible to get to and all kinds...

:laugh: For the wording and :banghead: for the situation

Who is up for doing FOIs? FOI who wrote the delivery plan FOI the training material