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  1. forestglip

    "What is chronic fatigue syndrome?" (article with 50 references on medicalmojo.co.uk)

    I skimmed. Some of the description of the symptoms of ME/CFS seems all right, though kind of generic sounding so possibly AI. It culminates in advertising a treatment that they sell:
  2. forestglip

    I suspected a hidden killer lurked inside my body. Here’s what I found.—Preventative MRI’s

    It is, but it looks like you need an account to read it. Not a huge barrier, but not everyone will want to do that. "Create an account to redeem your FREE article"
  3. forestglip

    I suspected a hidden killer lurked inside my body. Here’s what I found.—Preventative MRI’s

    Could you comment or add a quote on what this is about? The article is behind a paywall.
  4. forestglip

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Seems reasonable to me. Patients already go on ClinicalTrials.gov, where they'd see all these studies. This just filters it to relevant studies for their condition to make it easier. Is this kind of study even more harmful to a patient than something like a 2-day CPET study? Should those also...
  5. forestglip

    CrunchME

    Some posts have been moved to the thread for the Visible app: Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."
  6. forestglip

    From long COVID to neurodegeneration, 2025, Carpio-Orantes et al

    Response to the above: There is currently no evidence that long-COVID-19 leads to neurodegenerative diseases such as SDAT, amyotrophic lateral sclerosis, or Parkinson’s disease Finsterer, Josef No abstract, snippets: Web | DOI | Brain Circulation | December 2025
  7. forestglip

    From long COVID to neurodegeneration, 2025, Carpio-Orantes et al

    From long COVID to neurodegeneration Carpio-Orantes, Luis Del No abstract. Snippets: Web | DOI | PMC | PDF | Brain Circulation | Commentary | Jan-Mar 2025
  8. forestglip

    Immune transcriptomic changes in Australian Gulf War veterans, 2025, Eaton-Fitch et al

    Immune transcriptomic changes in Australian Gulf War veterans Eaton-Fitch, Natalie; Sasso, Etianne Martini; Marshall-Gradisnik, Sonya [Line breaks added] Background Gulf War Illness (GWI) is a chronic multisystemic illness found in one-third of Gulf War Veterans. The aetiology of GWI is...
  9. forestglip

    Preprint Risk Factors for Severe Post-COVID Condition in Children, Adolescents, and Young Adults, 2025, Donath et al

    Risk Factors for Severe Post-COVID Condition in Children, Adolescents, and Young Adults [Line breaks added] Background Post-COVID condition (PCC) in children and young people (PCCcyp) remains a significant health burden. Early identification of patients at risk for severe disease, including...
  10. forestglip

    Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment, 2025, Chalder+

    They also used a 19 year old study for prevalence. I assume because prevalence studies have moved on to newer criteria since then. I don't see any mentions of post-exertional malaise. I mean if they want to study a disease defined by those criteria, I guess CFS is the name of it. But it...
  11. forestglip

    Fibromyalgia in obstructive sleep apnea-hypopnea syndrome: a systematic review and meta-analysis, 2024, He et al.

    I appreciate your determination to pursue this lead, nataliezzz. I unfortunately don't have the bandwidth to really engage with the topic. Just from the abstract and a quick skim, ~20% prevalence of FM seems fairly high to me, even given fairly broad criteria, so it seems plausible that...
  12. forestglip

    Fibromyalgia in obstructive sleep apnea-hypopnea syndrome: a systematic review and meta-analysis, 2024, He et al.

    You did say: So it seems like we can't be sure of the prevalence of FM in asymptomatic OSA based on this study, since people in a study are probably mostly symptomatic.
  13. forestglip

    The feeling of being "poisoned" - what do we know about it?

    Note that we have a members only thread for this topic as well: Poisoned Feeling
  14. forestglip

    Feasibility of predicting next-day fatigue levels using heart rate variability and activity-sleep metrics in people with post-COVID fatigue, 2025, Abo

    Feasibility of predicting next-day fatigue levels using heart rate variability and activity-sleep metrics in people with post-COVID fatigue [Line breaks added] Background Post-COVID fatigue (pCF) represents a significant burden for many individuals following SARS-CoV-2 infection. The...
  15. forestglip

    Peripheral Levels of Selected Biomarkers in Patients with Post-Sarcoidosis Chronic Fatigue Syndrome, 2025, Małujło-Balcerska et al

    Peripheral Levels of Selected Biomarkers in Patients with Post-Sarcoidosis Chronic Fatigue Syndrome [Line breaks added] Introduction Chronic fatigue syndrome (CFS) is characterized by persistent fatigue and multiple symptoms such as cognitive impairment and muscle pain, often linked to...
  16. forestglip

    Effect of subcutaneous lidocaine–hydroxypropyl-β-cyclodextrin (HP-β-CD) on quality of life in patients with post-COVID condition…, 2025, Oostwouder+

    Subjective outcomes and no placebo. Speculation on why it would work: On why they think these don't resemble placebo effects: Primary outcomes: Secondary outcomes were individual symptoms. The ones furthest to the left had the largest improvements: Edit: Removed misinterpretation...
  17. forestglip

    News from The Netherlands

    The Sick Times: '“Not Recovered” protest for Long COVID, ME, and related diseases takes over The Hague' "Thousands of people took part online and in person for the hybrid protest calling for recognition of people with these diseases, better care, appropriate policy, and long term funding of...
  18. forestglip

    Preprint Identification of Novel Reproducible Combinatorial Genetic Risk Factors for [ME] in [DecodeME Cohort] and Commonalities with [LC], 2025, Sardell+

    Is it this: I think in figure 1 it says the test cohort has 3,579 cases and 113,735 controls.
  19. forestglip

    A natural experiment on the effect of herpes zoster vaccination on dementia, 2025, Eyting et al

    I think she might have missed that sensitivity check in the paper. Here's someone asking her if the peer reviewed version of the study checking other years allays her concerns (her post was about the preprint). Response: The same sensitivity check the person asked about was in the preprint...
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