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Which could be interpreted as non-pathological compensatory or displacement movements. (Not sure of the correct terminology.) I occasionally get a slight rhythmic side-to-side shaking of the head when tired or dealing with a high level of PEM (like today, after an hour in the dentists chair...

To judge the appropriateness of distress requires a God-like view of the human experience and condition, which no individual or group can ever possibly have. It is an absurd and reckless claim in the first instance, and every other instance.

What could possibly go wrong?

Seems a very complicated and less than honest way of saying: We don't know.

Exactly. If one was looking for 'perpetuating psycho-social factors' in conditions like ME/CFS, this iatrogenic crap and its consequences (including for accessing material support) is among the most potent of them all. And the most unnecessary. Problem, of course, is that it reflects very...

The prevalence numbers are going to be flaky until we get more accurate and precise diagnostic criteria.

The one trick pony is back in town.

The blindingly obvious problem being, of course, that this kind of list of 'symptoms' is exactly what you would expect to see in a child who has a serious physical problem that is undiagnosed, and being misdiagnosed and mistreated as a mental health problem. The appropriate safety factor, the...

And it could be virtually gaslighted and ignored.

so we can’t parade — but we can lounge in style. :D

The parasympathetic system may be healthy and functioning normally, but has an excessive load being placed on it by a pathology elsewhere in the body, which is causing it to be overstimulated. In which case further stimulating that system is not only unlikely to produce a benefit, it might be...

Yep. That is its purpose, which is why any evidence against its actual efficacy and relevance is ignored.

That is my sense of it. PEM is the consequence of whatever is driving the problems underneath. In the same way as somebody who has been stabbed and is bleeding onto the kitchen floor is not afflicted by blood on the kitchen floor syndrome. They are afflicted by a stab wound causing external...

I would like to see the end of the idea that specific dedicated exercise is some separate thing from daily life. The artificial separation of exercise from normal life is one the problems with exercise advice, as it removes the meaning or value from the activity, and for many is an inefficient...

Indeed. Where is the real mental and moral pathology here? There is (was?) an American psychiatrist who eventually gave up on the profession, after coming to the view that most psych patients would get more therapeutic benefit from having a nice pet dog/cat.

Yes, not all publicity is good.

That is interesting.

ME/CFS: Under the Hood ME/CFS: Behind the Science (or Research)

So they prefer uncritical analysis? If (if) they really are interested in finding the weaknesses in their hypothesis and experimental methodology, and getting the right (or at least better) answers, then the best people to find it are their critics, who will also usually do it for free.

Not just the money, though that is a big one. Being one who 'recovered' can bring a kind of calling, of being special, a leader chosen to help the lesser mortals. Only a short step from there to the unshakeable certainty of fanaticism.