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  1. InitialConditions

    Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised

    I would be very surprised if a blend of amino acids does anything significant. Only significant result is based on subjective outcome (Chalder Fatigue Scale), but of course this study is placebo-controlled. Some of these amino acids can be used to affect mood, so perhaps that is playing a role.
  2. InitialConditions

    Research funding: Examples needed of ME research projects failing due to not getting funding

    I think to get any relevant links, your question needs to be more precise. Are you interested in only ME/CFS research? Biomedical only, or all ME/CFS research? In the UK, or worldwide? Still, I don't quite understand your question. It seems what you want is a list of research proposals that...
  3. InitialConditions

    Closed UK: DecodeME updates, was recruitment thread.

    I'm a little dissaspointed by the numbers. It seems we're likely stuck around 10k for DNA samples, far shy of the 25k goal. IMO, it is important to patients because every extra patient adds power to the study. Personally, I would like to know what the project leaders and researchers think...
  4. InitialConditions

    Is severe tiredness 'chronic fatigue' or something else? : Story by Dr Martin Scurr

    That's because it is (see the link to the original Daily Mail article)
  5. InitialConditions

    Noise cancelling devices for sleep?

    They don't, but I think you might still be able to find a pair of the Sleepbuds ll, somewhere.
  6. InitialConditions

    Noise cancelling devices for sleep?

    Check out Bose Sleepbuds—headphones made for sleep.
  7. InitialConditions

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Not sure if you are aware, but, according to a post I saw on Twitter earlier, the AGM meeting has been postponed. Not sure of the source for that info. EDIT: The source is an MEA Facebook post.
  8. InitialConditions

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    From an email this morning: BACME 2023 National Services Survey launched BACME have recently launched our 2023 National Services Survey. We hold a database of NHS specialist ME/CFS services, the majority of whom are featured on the BACME services map, and they have all been sent an invitation...
  9. InitialConditions

    Research news from Bhupesh Prusty

    I agree. His tweets are often quite strange. Also, you can't just up sticks and move a research group, unless you have won a transferrable grant or fellowship, which I don't think he has. He's probably fed up with chasing grant money, as most early-career researchers are.
  10. InitialConditions

    Closed UK: DecodeME updates, was recruitment thread.

    I tweeted this yesterday, and I'm sharing because I think it's important. @Andy would you or someone from DecodeME be able to raise this with the MEA?
  11. InitialConditions

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He is deeply confused, and his arguments can be refuted in seconds, as they have been here and on Twitter. Amazing this man was a professor of evidence-based medicine. He is obsessed with speculation and hypothesis.
  12. InitialConditions

    Long Covid in the media and social media 2023

    It was a case in a young boy—headaches and tiredness since third(!) covid infection. A link with exertion was made, as his Mum said his headaches were worse after he's been to football. Doctor said this fits with long covid, and very briefly brought up the concept of pacing.
  13. InitialConditions

    Long Covid in the media and social media 2023

    According to the Freeview online TV guide, there is case of long covid on tonight's episode of GPs: Behind Closed Doors at 7pm on Channel 5 (UK)
  14. InitialConditions

    Closure of reMEmber (the Chronic Fatigue Syndrome Society) effective from 31st March 2023.

    Yes, they were active in Forward ME. There are a few smaller charities for which it is not exactly clear how active they are, if at all. I'm glad Remember have made their closure known.
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