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Well that could be positive although presumably some journalists will have kept copies. Also maybe they still add similar information as background notes to press releases.

That programme definitely looks to be a significant improvement over previous years

That would be great but anyone who takes a different stance will surely be weeded out in the recruitment process.

Yes indeed should be named.

I’m trying to be open minded and not throw the baby out with the bath water but this is making me twitchy. I’m happy to give my dna and data for this research. I would be happy for it to be used for future work by the biobank team or others doing biomedical research. The prospect of some of...

That guy is such a creep

I would expect there will definitely be desert areas if it’s mainly dependent on local groups because there are areas like mine where seemingly there isn’t any type of formal or informal grouping. A map like this could help me in trying to gain allies among the voluntary sector for setting up...

Ok thanks for the info

Presumably. Did you find anything that mentions whether members of the government can take part in APPGs @Sly Saint i couldn’t see anything in the document. But there could be a convention like there is on front benchers not signing Early Day Motions.

Hi @duncan what are RICO violations?

@Kalliope it’s supremely ironic that Vogt is talking about pseudoscience when he is such a zealot for LP ultimate pseudoscience

@ahimsa. Yes physical exertion definitely drains my energy quickest , conversation especially in social groups is next possibly contributed to by sitting around a table or whatever for a few hours whereas forum reading/posting or writing emails are still possible even when I’m fairly low on...

I’ve sent a message through Facebook as well hopefully it will get put right first thing tomorrow if not sooner

Anyone looking at the ME Association web page will see they’ve added an example of an email. Unfortunately it gives the date of the meeting as 12 January not 14th.

With the NICE review on the horizon it’s worth giving it a try again. Also the GWAS will be something MPs can get behind as well. Presumably Carol M has sounded out colleagues before taking this step and found enough potential support to make it worthwhile.

A new parliament seems as good a time as any to give it a go. I’m in a completely different city now. I have no idea about my MP here I guess I need to start finding out.

Just posted by ME Association Asking people to contact their MPs to ask them to join. https://www.meassociation.org.uk/2020/01/the-all-party-parliamentary-group-on-me-to-re-convene-please-invite-your-mp-to-attend-09-january-2020/

“The NHS test which is highly accurate” ???

Dave has a lot of patience engaging with people who have a wide range of stances in ME politics . I find some people rather dogmatic and just tend to skip over their comments. I wish I could be more open minded.

Ok thanks Andy. Hopefully you and the research team will be listened to by the funders. I hadn’t understood the extent of SMC relationship with them. Not an easy situation but if looked at with optimism possibly an opportunity to bring some kind of change. At the very least the funders will...