Netflix is hit and miss and has much lower credibility than BBC but it’s better than nothing. Netflix recently made a documentary about CRPS, another contested illness considered functional by some, and it was heavily biased in favour of the family and against the mainstream physicians involved...
Interesting background. I didn't know that BBC commissioned a statistician to review PACE. Without knowing more details about the statistician's report, it's difficult to judge its scope or accuracy.
As someone who was closely involved in the statistical reanalysis of PACE FOIA dataset, I can...
This infamous study should send a chill down anyone’s spine. Despite clear evidence of organic disease and a fatal outcome, they still would not admit that they were wrong about FND. I hear this a lot anecdotally as well. Cases where someone was told they had FND, then a real diagnosis is made...
We can expect to see quite a bit of this scrambling to reposition now that updated technologies like 7 tesla MRI scanners are becoming available. Any new diagnostic procedure in neurology puts a lot of psychobabble careers at risk.
The problem with this is that it’s obviously moving the goalposts. CBT for nonepileptic seizures is billed as curative, not supportive, just like CBT for ME/CFS. When CODES showed that CBT doesn’t work, the redefined the goal of treatment as supportive/palliative. Ok so you still have...
Yep. But recruiting sick controls who are as inactive as us is very challenging. I don’t know anyone who moves as little as me. Even people with cancer seem more active than me.
We have every reason to be super cautious. Have the genetic association studies (eg polygenic risk scores) in psychiatry led to a reduction in stigmatisation/abuse of patients with schizophrenia, depression etc? Nope, not in the slightest. There's no clear pathway from finding a genetic...
Syncopal episodes can cause weird movements and get misdiagnosed as nonepileptic seizures. The symptoms of POTS wax and wane and affect mostly young women. Fertile ground for FND demagoguery/abuse.
Another person with nothing new to offer inserting herself into a conversation that has been going on since before she was born.
The issue here is that no matter how many caveats and disclaimers they put in academic papers about “association” and “risk factors”, the midwit clinicians who...
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