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The vitamin D / latitude idea has been around for a while. I am not aware of any evidence from controlled trials that vitamin D cures or halts any of the purported illnesses it's been trialled for. CCSVI made waves years ago and turned out to be a dud when an actual RCT was done.

I didn't say those symptoms are part of ME. I was questioning the notion that someone couldn't have epilepsy AND ME. If someone has had ME for 30 years and they develop Parkinson's disease later on, I think we need to be careful not to attribute all their symptoms to this "real disease" that's...

I bet almost none of us have had such million dollar work-ups. Where would a regular doctor even know to begin to look? I suspect "rare diseases" are "rarely diagnosed" because there are so many diseases with so few cases or no cases that any individual MD has seen that they don't even appear on...

He mentions one patient having Parkinson's. Its symptoms and presentation are completely different. Don't see why that would preclude someone from having ME or how it could account for ME symptoms. He also mentions head injuries with LOC and strokes. Again, the head injury could just be the...

Very weak article. First of all, none of those tweets are 'abusive' or threatening. Being rude is not a criminal offence (yet). These 'professors' just want to go back to a time when they could issue their ex cathedra pronouncements with no pushback whatsoever from the masses and no...

Pretty much.

I know this is an old thread but I just wanted to say I also received this phishing email and although I did not click on the link or give the scammers any information, my contact details were clearly leaked from that website hack and I had to change my phone number (as I started receiving weird...

No idea really.

Good news IMO. Implies that nothing is structurally wrong with the mitochondria per se. Likely to be a signalling problem telling them to slow down energy production.

Mirtazapine is one of the most fatiguing antidepressants. Possibly the most fatiguing there is. It's a great drug to use if you're trying to make CBT look good.

Medically unexplained doesn't mean medically unexplainable. Just because medical science doesn't yet understand something, it doesn't mean it's imaginary. There is a certain arrogance amongst these "professors" of medicine (many of whom are clinicians with a few crappy published papers and only...

I couldn't get past the first sentence to be honest.

These sorts of "yuppie flu" headlines will continue forever unless patient organisations start pushing back with complaints to authorities or even lawsuits.

Me too. Cortisol and adrenaline probably.

Lots of psychotherapy trials use this design because it makes it exceedingly easy to show a statistically significant result in favour of 'therapy'.

That's not a control group. This is a waiting list comparator arm, a useless trial design. A true control group would force these patients to get out of bed/house, show up to the hospital on the same schedule as the intervention group but have them play solitaire or read a newspaper instead...

Sorry to hear that. I didn't realise an old thread had been resurrected, just saw the dates now.

Hi @Justy, I too have experienced pseudobulbar affect, though not quite to the same degree of severity as what you've described. One of the old school books or articles I read on ME described it as being part of the clinical picture during the initial stages of the illness. I forget who said it...

I seem to recall filling out their questionnaire. Useful study. My ED encounters (for what were OI flares in hindsight) have been uniformly negative, encountering people who ranged from criminally stupid or lazy to smart and compassionate but having no knowledge whatsoever of dysautonomia. It's...

I've had concerns about this line of research (on the other forum) since the MRC funding was announced for this project. Academic psychiatrists have been asserting for 20+ years that interferon-alpha treatment for hep C is a biological model of depression. There are 1000s of publications on this...