Search results

  1. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    @Jonathan Edwards are there any academic physicians you know in the UK or even elsewhere who might fit this bill? I know you're already thinking about this. I assume from your posts in this thread you have had some difficult conversations with doctors already, but surely there must be one...
  2. V.R.T.

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    If this is accurate it's yet another damning blow to the psychobehavioural brigades.
  3. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Thank you thats very clearly articulated. This is all so complex it boggles the mind!
  4. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Do you think that taken together with those papers, these findings give any indication of what's driving things upstream?
  5. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Could those signals be the increased CD24 and CD38 (this one was just under stimulation iirc) that were found in the Armstrong/Cambridge/Mensa paper?
  6. V.R.T.

    Medical gaslighting: conceptual and theoretical foundations, 2026, Noble

    I think it is this aspect of what has been done to us that is most odious and damaging, and it is this aspect that the wider public needs to understand. I think if there is a breakthrough and a change in perspective because of that, many people will be absolutely horrified that this could have...
  7. V.R.T.

    Virus-Induced Endothelial Senescence as a Cause and Driving Factor for ME/CFS and Long COVID: Mediated by a Dysfunctional Immune System, 2026, Nunes +

    Publish what? Edit: oh i misread sorry. Thought it said preparing to publish.
  8. V.R.T.

    Trial Report REGENECYTE cord blood cell therapy in post-COVID syndrome: a phase IIa randomized, placebo-controlled trial, 2026, Huang et al

    They say fatigue not PEM which is a red flag Any chance this is a real effect?
  9. V.R.T.

    Genetics: BTN2A2 and BTN3A3

    Could this potentially be a link to @DMissa's recent preprint?
  10. V.R.T.

    Genome-wide meta-analysis identifies genetic risk loci for mono- and polyneuropathies in 983 477 individuals, 2026, Broberg et al.

    Interesting... Edit: and DCC
  11. V.R.T.

    Reduced ATP-to-phosphocreatine ratios in neuropsychiatric post-COVID condition: Evidence from 31P magnetic resonance spectroscopy, 2025, Schilling+

    So that's three papers showing similar findings? And in different parts of the body?
  12. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Fair point, after all I am one of those members!
  13. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    I'd like to say perhaps it is but knowing our luck... But it sounds like it's definitely somewhere Ponting and Co should try for funding. I'm sure they've thought of it so I won't tag him or anything. But it would give me a bit of faith in the world back if the German funders were smart enough...
  14. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    As ever you sum this up so well. Agreed, which is why if we have a breakthrough we need to hold institutions to account, not just for justice and change for pwME but to shine a light on the wider issues in medicine.
  15. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Nobody real cares you mean? PwME and their loved ones don't count in this context. Like they say on Succesion: No Real Person Involved. [To clarify I'm not implying you personally think this] Elon Musk is the richest man on the planet and thus probably beyond the reach of the legal system in...
  16. V.R.T.

    Reduced ATP-to-phosphocreatine ratios in neuropsychiatric post-COVID condition: Evidence from 31P magnetic resonance spectroscopy, 2025, Schilling+

    I hadn't made that connection- that's really interesting!
  17. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    How are patients supposed to know the diagnostic criteria issues with POTS MCAS etc when charities and advocates and friendly doctors all talk about them with the same legitimacy as MECFS?
  18. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    I can't think of a better way for Germany to spend the first lot of this funding than to put £20 million towards SequenceME. Is funding constrained to German projects? If not can people who are connected maybe make some introductions and get people talking? The samples are already collected so...
  19. V.R.T.

    Canada - Unknown brain disease in New Brunswick

    Well, the Wesselyite culpability denial machine is working as intended...
  20. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Precicely. I tried to hard not to be one of 'those' patients, did basically no research past the NHS 'chronic fatigue syndrome' page when I was undiagnosed and mild, never claimed to have 4 different diagnoses or stated anything with confidence except that I felt unwell all the time. And I was...
Back
Top Bottom