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  1. Sean

    A Digital Platform with Activity Tracking for Energy Management Support in Long COVID: A Randomised Controlled Trial, 2025, Hayes et al

    and offers a promising framework for future research in chronic conditions where recovery is less likely.” If it didn't deliver a benefit, then what is it purpose?
  2. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Yeah, that's what we need. More inspiration and motivation. :cautious: Turns out the wellness & lifestyle movement is among the most unhealthy pieces of nonsense the human race has ever inflicted upon itself.
  3. Sean

    UK Government Delivery Plan for ME/CFS, published 22nd July 2025

    Bordering on guaranteeing it. Cowardice is a word that should be used more to describe what is going on.
  4. Sean

    Everything is in The Vagus Nerve: What is The Relationship Between Chronic Fatigue Syndrome (CFS) and Coronavirus?, 2020, Selma

    If ever there was a stark example of a mixed bag, it is social media. Capable of doing both great good, and great harm, sometimes on the same page.
  5. Sean

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Not that having such a history should make any difference. Mental illness does not confer immunity to physical illness.
  6. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Yes, let's not be too generous about the motivations for working in healthcare. I worked in the health system before getting sick and that range covers the full spectrum, from the most noble to the most self-serving. That said, most I worked with were trying to do the best for patients, within...
  7. Sean

    Shingles vaccines, chickenpox, Shingrix

    @tornandfrayed How is it going? Pull up okay?
  8. Sean

    Association between lifestyle factors and the prevalence of IBS and chronic fatigue syndrome in Al-Baha City: a cross-sectional study, 2026, Alamri

    CFS was significantly associated with smoking (p-value=0.049). Now that is borderline.
  9. Sean

    Modulating subjective & objective cognitive state fatigue in long COVID with repetitive anodal tDCS...double-blinded RCT, 2026, Mischke

    These results, however, underscore the importance of including neurophysiological endpoints in intervention research and highlight the need for developing more robust and individualized stimulation protocols. Future studies should consider extended stimulation regimens, alternative task...
  10. Sean

    Protocol Breathing control training as a treatment for functional seizures (BREATHS trial): a multicentre, assessor-blinded, randomised... 2026 Kanaan et al

    Exactly. How do they now it is (unjustified) stigma/fear of psychiatric diagnoses and therapies that is the problem, as opposed to those diagnoses and therapies being false, and useless, and sometimes a lot worse than merely useless, and hence the stigma and fear of them being entirely...
  11. Sean

    Effects of a Rehabilitation Programme Focused on Energy Management in People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome 2026, Portugal

    which aims to empower participants to manage their energy effectively, At what point did the profession demonstrate having the requisite knowledge to be able usefully inform patients on this?
  12. Sean

    British Association for Counselling and Psychotherapy 'Letter to the Ed' by Emma Hampson

    Just shows the utter contempt in which we and our story are held by the medical establishment.
  13. Sean

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    They want the responsibility, and hence the blame for failure, to be in our hands, while they retain the power to define us and our health issues and lecture us from on high about how to handle them.
  14. Sean

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    IIRC, it depends on when the container was made, as the toxic paints stopped being used a few years back. However, if it has a wood floor, then it may well be treated with strong persistent insecticides.
  15. Sean

    Built Me/Cfs safe room in the bush at the back of a house. Design help/suggestions.

    Lots of videos on Youtube about small houses, with lots of good ideas about the details, including layout and how to optimise the use of space.
  16. Sean

    Trial By Error: 'An Essay on Living with Severe ME'

    It certainly is.
  17. Sean

    Physical activity levels in ME/chronic fatigue syndrome before and after a 2-day cardiopulmonary exercise test protocol, 2026, Receno

    Apart from anything else, it shows considerable contempt for our hard earned experiential understanding of it, which is why they have to include a component in their definition that says we have perceptual pathology. They think that we are just ignorant delusional idiots. It is a maddening and...
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