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  1. V.R.T.

    Rosetta Stone Study: £1.1m awarded to investigate links between ME/CFS and Long Covid

    Damn! Well, it was a nice thought while it lasted. Could you possibly expand on why?
  2. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    That's a good point. Perhaps Ponting and Co could start some kind of outreach/ask around for one? Same with Altmanns team etc.
  3. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    That's a fair point. But people on here will probably be able to figure out if tbe result is real.
  4. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    From reading in the other thread it seems like she wants to do cd20 as well as cd19 and cd38 maybe? I mean at least we'll get some really concrete answers on that and put the rituximab debate to bed at last if they do that.
  5. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    Apparently isa is funded too...
  6. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    I'm not very optimistic for this trial in particular but this is very good news because the isatuximab trial was supposed to be a platform trial with a drug of this class so hopefully that will now go ahead as planned too! It looks like uplinza it works on cd19 not cd20 like rituximab...
  7. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    I thought she already has pharma funding for isatuximab?
  8. V.R.T.

    Rosetta Stone Study: £1.1m awarded to investigate links between ME/CFS and Long Covid

    If it can be replicated, would that be enough evidence for a T cell drug trial?
  9. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    As in the main pediatric team were complaining on bluesky beause they wanted psychatric services, or the project paediatric people wanted them?
  10. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    Agreed, I think this is an unnecessarily strict constraint.
  11. V.R.T.

    Germany's "National Decade Against Post-Infectious Diseases"

    I don't know about this. Something like daratumumab working out could give a huge boost to the basic science. But that is already happening. I think there are a few things like T cell depletion that we are very close to being at the point where a therapeutic experiment is justified. At the same...
  12. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Could you expand on how one might do this? Thanks for your insightful replies in this thread btw!
  13. V.R.T.

    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    @Jonathan Edwards are there any academic physicians you know in the UK or even elsewhere who might fit this bill? I know you're already thinking about this. I assume from your posts in this thread you have had some difficult conversations with doctors already, but surely there must be one...
  14. V.R.T.

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    If this is accurate it's yet another damning blow to the psychobehavioural brigades.
  15. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Thank you thats very clearly articulated. This is all so complex it boggles the mind!
  16. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Do you think that taken together with those papers, these findings give any indication of what's driving things upstream?
  17. V.R.T.

    Multi-omics identifies lipid accumulation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cell lines: a case-control study, 2026, Missailidis et

    Could those signals be the increased CD24 and CD38 (this one was just under stimulation iirc) that were found in the Armstrong/Cambridge/Mensa paper?
  18. V.R.T.

    Medical gaslighting: conceptual and theoretical foundations, 2026, Noble

    I think it is this aspect of what has been done to us that is most odious and damaging, and it is this aspect that the wider public needs to understand. I think if there is a breakthrough and a change in perspective because of that, many people will be absolutely horrified that this could have...
  19. V.R.T.

    Virus-Induced Endothelial Senescence as a Cause and Driving Factor for ME/CFS and Long COVID: Mediated by a Dysfunctional Immune System, 2026, Nunes +

    Publish what? Edit: oh i misread sorry. Thought it said preparing to publish.
  20. V.R.T.

    Trial Report REGENECYTE cord blood cell therapy in post-COVID syndrome: a phase IIa randomized, placebo-controlled trial, 2026, Huang et al

    They say fatigue not PEM which is a red flag Any chance this is a real effect?
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