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  1. Sid

    Closed UK: DecodeME updates, was recruitment thread.

    Impressive response rate. Considering how few people in the UK have actual ME/CFS (as opposed to PACE/Crawley broadly-defined fatigue), a target of 25k was super aspirational IMO. Perhaps recruitment could be expanded to other countries.
  2. Sid

    What do medical students think about functional neurological disorders? 2023 Escribano-Paredes et al

    Yup. The “treatment” often consists of a scribbled piece of paper with a weblink to Stone’s ghastly website. But it’s ok because the grifter doctor says he believes the patient!
  3. Sid

    What do medical students think about functional neurological disorders? 2023 Escribano-Paredes et al

    Fooling no, but there has been a definite attempt by leading proponents of FND to increase mainstream legitimacy of this diagnostic category by appearing distance themselves from Freudian “conversion” narratives, by emphasising positive diagnostic signs (as opposed to being a diagnosis of...
  4. Sid

    What do medical students think about functional neurological disorders? 2023 Escribano-Paredes et al

    Useful study. To me, these findings suggest that medical students aren’t fooled by the attempted rebranding of FND. Most of them are aware that it’s all just psychosomatic old wine in new bottles.
  5. Sid

    BBC News: 'Major moment in MS research' as new Octopus trial starts

    It’s impressive that this guy convinced a charity to give him 13 million pounds for this nonsense.
  6. Sid

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Sounds like a gruelling ordeal. I have mild-to-moderate ME these days and there’s no way I’d be able to handle all that.
  7. Sid

    Brainstem volume changes in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID patients (Thapaliya et al, 2023)

    I didn't even know they were using 7 Tesla scanners in humans now. When I was in college, I recall being told that this stuff was for rats only. https://pubs.rsna.org/doi/pdf/10.1148/radiol.2019182742 Damn.
  8. Sid

    USA: The RECOVER Initiative - Long Covid research

    A whole new crop of people entering the field and wasting government money on treatments that have already failed for the last 40 years.
  9. Sid

    Research news from Bhupesh Prusty

    Lol https://twitter.com/bhupeshprusty/status/1641571486161829890
  10. Sid

    OpenAi's new ChatGPT

    The worst thing about it is how confident it sounds while it’s hallucinating made up things. I asked it to produce some fairly basic code in a niche area and it spat out nonexistent gibberish with extreme confidence.
  11. Sid

    Spouse wants to invite a friend to visit when I’m very sick

    Same here. When I had mild ME, I used to tolerate these cultural practices and would allow people I’m not close friends with to stay in the spare bedroom. Some of these visits were incredibly annoying, up to a week of forced activity. I’ve long stopped allowing anyone to come over which means no...
  12. Sid

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    This is truly despicable. I’m actually speechless.
  13. Sid

    Cushing’s Disease Presenting with Functional Neurological (Conversion) Disorder 2023 Ashrafzadeh et al

    It’s so strange that they published this. I hope he sues everyone involved in his “care” for malpractice.
  14. Sid

    Open Medicine Foundation (OMF)

    Much hype, zero results so far.
  15. Sid

    Gait in ME/CFS

    My gait is abnormal. I’ve had other people spontaneously comment on it and even laugh at the way I walk. As I get progressively fatigued, my feet start dragging along the ground. I fall at least a couple of times a year.
  16. Sid

    News from Southeastern Europe

    Loss of consciousness. Dizziness, syncope and the sorts of symptoms we would call dysautonomia.
  17. Sid

    New blood diagnostic company started by Mike Snyder at Stanford

    Fingertip sampling is more painful but it has other advantages. It can be repeated several times a day to track micro changes in a patient with chronic illness. It doesn’t require a trained phlebotomist, doesn’t require a trip to the doctor’s office (useful in places like the US where many ppl...
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