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  1. feeb

    REC advice on PACE trial data changed in favour of release

    Hahaha! Surely not? Ouch, my irony meter.
  2. feeb

    Complaint to the GMC: Dr Christian Jessen’s ‘dick head’ and ‘bullshit’ abuse of a parent carer, Dr Neil MacFarlane MRCPsych, 18 July 2019

    Between this guy and all those charmers claiming to be medical professionals on reddit, god help us all. A truly terrifying lack of empathy.
  3. feeb

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    Yes, as far as they're concerned any complaints are simple malingering, and no clinic is ever going to report "increased malingering" as a harm they've perpetrated!
  4. feeb

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Poor Michael. Almost (but not quite) tempted to give him a pity like to make him feel a bit better.
  5. feeb

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    lol. so that's alright then. lol, so they got rid of the stuff that immediately makes it look like Obvious Woo at the very first glance to anyone with functioning critical facilities!
  6. feeb

    Weighted blankets

    Your mentioning the fan reminded me of an old friend of mine from California. He once recommended freezing a 3 litre bottle filled with tap water, and then putting the frozen bottle in front of a fan, so the fan sprays cold droplets through the air! (I don't get on with this method because the...
  7. feeb

    Weighted blankets

    I also can't sleep without something covering me, so I put a filled hot water bottle in the fridge during the day, and put it under my feet at night. It lets me cool down while still keeping a sheet on. Sticking it in the freezer might last longer!
  8. feeb

    Monitoring treatment harm in [ME/CFS]: A freedom-of-information study of National Health Service specialist, 2019, McPhee et al

    They're referring to DOMS and acute muscle soreness, which are indeed a normal function of conditioning and building muscle. The only problem is that these are bugger all like ME's symptoms, and conflating the two is gaslighting bullshit. They're not recognising symptoms or relapses by...
  9. feeb

    Poll: Gastrointestinal symptoms

    I don't fit any of the options either. I developed terrible acid reflux after ME onset, but there doesn't seem to be any pattern that ties them together (e.g. pacing or not and PEM make no difference), so I think in my case it's coincidental. My mum and my brother also have bad reflux. I can...
  10. feeb

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    He's probably already blocked most of the people who'd be likely to respond!
  11. feeb

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    There's a nuance here that I don't understand. What's the difference between a withdrawal and a retraction? Other than the former being a polite way of allowing the authors to save some face, I mean.
  12. feeb

    Tinnitus Poll : Making a distinction of subtypes

    One of the main things I'm getting from this thread is that tinnitus comes in almost as many different flavours and from almost as many different sources as there are different people. Which I knew anyway, but it's interesting to see it in practice!
  13. feeb

    Tinnitus Poll : Making a distinction of subtypes

    I mentioned this in another thread, but I have two very distinct types of tinnitus. One is the "normal" continual tinnitus related to my hearing loss, which is the ringing/buzzing/whining/etc noise that one normally thinks of when thinking about tinnitus. I've had that all my life and it has...
  14. feeb

    K Pressin: new treatment for ME CFS(?) - video Dr Derek Enlander (25 June 2019)

    https://trademark.trademarkia.com/k-pressin-88296207.html Looks like they're having some trouble at the patent office: Gearup.com redirects to an apparently unrelated Thomson Reuters website.
  15. feeb

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Those trials would never be approved, which is a pity because just thinking about them is making me feel very hungry.
  16. feeb

    Unhealthy attachments: myalgic encephalomyelitis/chronic fatigue syndrome and the commitment to endure - chapter in book on queer commitment

    It does make sense. It's an academic publication rather than a scientific one, and these are always written in irritatingly abstruse ways, but the fields are so jargon-laden that I guess there often isn't much choice. It's aimed at people who already have a background understanding of the terms...
  17. feeb

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    I thought ME/CFS and FM were more prevalent in female patients, and ASD was more prevalent (or at least with better rates of diagnosis) in male patients? Isn't this an unusual place to be searching for associations? I do find it interesting in that I see people saying they have ME, CFS, or FM a...
  18. feeb

    About the Idea That You’re Growing Horns From Looking Down at Your Phone, 2019, New York Times

    It's surprising to see such a critical article on it - the rest of the media seemed to have just gobbled up the original story wholesale. It's always fascinating how little thought people put into these things. Lacemakers in the 16th century spent most of their lives hunched over their work...
  19. feeb

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Yes, this is how I see it. Sceptics are already sceptical of us. The fact that the LP "works" is just more evidence to them that we're a bunch of woo-woo hysterical middle-aged women, so no need to look any further or bother debunking anything. The sceptic community has been worse than useless...
  20. feeb

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    Wikipedia has explicit rules against weasel words in articles. I find it almost equally amusing and infuriating that the BBC is happy for their editorial standards to be weaker than those of Wikipedia.
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