Search results

I just did the same thing with my Mam and after watching it, she thought we were now campaigning for the right to euthanasia and was very confused by the whole thing.

Me too. It could be interpreted in so many strange ways. Edit: For me personally: my first interpretation of that symbol for someone in whitney’s state (i was in that state for years too) is not a symbol of ‘help me to get better’ I won’t mention what it means to me.

Yep!

@Inara i’m just off to look for an old box... Edit: 50mg so yeah maybe a 25mg dose might be okay

I have totally mixed feelings about this drug. I was on it 5 years ago for migraine and nerve pain. It was a fantastic drug for the migraine and also helped with some of the ME pain. It also gave me energy, but in a hyper wired way. The downsides: * An insatiable appetite, hunger 24/7. And...

Ah right, thanks for explaining, i know about the conversion disorder label, just thought they were using MUS these days. Too many labels

When did this happen? Is it definitely being applied to us? I didn’t know anything about FND until just now or if i did, i’ve forgot :ill: Some of the symptoms are similar but the list doesn’t seem to cover PEM. I’ve noticed on an FND website that CBT has only a 13% success rate and mainly...

‘Carol, who said ME is a physical rather than mental condition’ I wish we could stop referring to this at all. By mentioning it, its putting that idea back into people’s heads every time. Instead of just talking about it like the physical illness it is. We don’t hear people with other physical...

I think i’ve listened to it 6 times now :oops:

Beautiful work @Robert 1973 well done! I don’t use social media but will forward the video to everyone I know.

I love MC Escher drawings, they look like the inside of my brain

Congratulation @Gary Burgess Lovely to wake up to some happy news :) I wish you both a wonderful future together

It was my OT that got me an NHS wheelchair a few years ago. It was a lot of faff, but going to the hospital to pick the size i needed etc. (I have a teenage sized one even though i’m 40 haha) wasn’t too bad of an experience! Benefits only acknowledge nhs wheelchairs. If you buy it yourself it...

Wish i could like your post ten times just for the description :)

I feel like printing it off and framing it :) I feel befuddled and discombobulated but in a good way. My brain doesn’t know how to respond to reading accurate information for a change :)

That’s a good point to make when one of them throws that line at us, especially in the beginning. They are often right that we do have false illness belief just the opposite version of the one they’re peddling.

Ditto o_O

:laugh: :rofl: :laugh: :rofl: :thumbup:

That would be a great cover and title of a book on this topic :)

RIP Bob. We all love you x