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  1. Cheesus

    The effects of non-invasive vagus nerve stimulation on immune response and reported fatigue in patients with CFS, FM and RA, 2021, Traianos E et al

    Traianos E, Dibnah B, Lendrem D, et al AB0051 THE EFFECTS OF NON-INVASIVE VAGUS NERVE STIMULATION ON IMMUNOLOGICAL RESPONSES AND PATIENT REPORTED OUTCOME MEASURES OF FATIGUE IN PATIENTS WITH CHRONIC FATIGUE SYNDROME, FIBROMYALGIA, AND RHEUMATOID ARTHRITIS Annals of the Rheumatic Diseases...
  2. Cheesus

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    It didn't require any active persuasion from me. They simply sent me a text asking me to book my vaccination. I'm 30.
  3. Cheesus

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    merged thread https://www.theguardian.com/society/2021/mar/11/long-covid-and-graded-exercise-therapy
  4. Cheesus

    News from Long Covid Physios

    I listened to the audiobook. The appendix has a series of short, guided exercises. They are not exercises which you can use for routine guidance as they are only around a minute long each, but it is enough to learn about different techniques. I experimented with a few until I settled into a...
  5. Cheesus

    News from Long Covid Physios

    Completely anecdotal, but I read Breath by James Nestor roughly a month ago. Since then, I have been working to optimise how I breathe. I have also been doing long meditation sessions that focus specifically on breath work. I have been meditating for years, but what I am doing now are specific...
  6. Cheesus

    Reversible widespread brain 18F-FDG PET hypometabolism in [CFS] treated by hyperbaric oxygen therapy, 2021, Guedj et al

    I did a little reading on this yesterday. My understanding is that it's very difficult to do placebo-controlled trials of HBOT. Sham treatments cannot mimic the impact of air pressure changes on the inner ear and the participant is very likely to know they are in the placebo group.
  7. Cheesus

    DecodeME - UK ME/CFS DNA study underway

    I just woke up to discover this near the top of the Guardian website. I don't visit the forum much and was only vaguely aware that something was going on. I just wanted to pop in and say that I am in awe of the work you guys have done. To build this from the ground up when you're all so...
  8. Cheesus

    Coronavirus - worldwide spread and control

    Is anyone else starting to feel a creeping sense of terror or is it just me?
  9. Cheesus

    Coronavirus - worldwide spread and control

    Leaked Public Health England document shows they expect the crisis to last until Spring 2021 and for the virus to infect 80% of the UK population. https://www.theguardian.com/world/2020/mar/15/uk-coronavirus-crisis-to-last-until-spring-2021-and-could-see-79m-hospitalised
  10. Cheesus

    Coronavirus - worldwide spread and control

    A highly instructive article and interactive chart to show how introducing aggressive measures as early as possible impacts peak severity and overall mortality: https://www.nytimes.com/interactive/2020/03/13/opinion/coronavirus-trump-response.html
  11. Cheesus

    Coronavirus - worldwide spread and control

    https://www.theguardian.com/world/live/2020/mar/14/coronavirus-live-updates-uk-us-australia-italy-europe-school-shutdown-sport-events-cancelled-latest-update-news?page=with:block-5e6cf4438f088d7575593610#block-5e6cf4438f088d7575593610
  12. Cheesus

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    I’d like to think we are reaching a point where our is history is no longer a useful guide to our future. Perhaps that is just wishful thinking, but i need some hope.
  13. Cheesus

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    In the above thread, @Jonathan Edwards said (my bold): Could this be the "something going on in the brainstem"? If so, I find it very exciting that we're beginning to connect tangible abnormalities together.
  14. Cheesus

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    Naltrexone works fantastically for me. I went from being almost as sick as Whitney Dafoe to using my laptop several hours a day, listening to audiobooks, sitting in bright rooms, and holding prolonged conversations in a matter of weeks.
  15. Cheesus

    Bedridden For 11yrs And Cured Himself

    Merged thread An interesting story about a man who recovered from a mystery disease that I am sure many of you will find very familiar. https://www.theguardian.com/lifeandstyle/2019/sep/20/i-cured-my-own-mystery-disease-experience
  16. Cheesus

    Why is The Guardian's coverage on ME/CFS so poor?

    Chiming in to add my voice to the chorus of disappointment. I think Marco is probably right; I think they believe they are taking a pro-science, anti-populist stance, despite the loud racket being made by respectable voices in the scientific community. The only columnist who I have seen write...
  17. Cheesus

    Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

    I saw it too. The question was about how children with ME are often taken away from their parents as a response to refusing to undertake GET. As you say, May did not know about the issue and promised to look into it.
  18. Cheesus

    UK Parliamentary debate today - Thursday 24th January 2019

    "Recommending exercise seems as sensible to me as asking frostbite sufferers to walk about in the snow" - Kelvin Hopkins
  19. Cheesus

    UK Parliamentary debate today - Thursday 24th January 2019

    Something that is clear to me thus far from this debate: writing to your MPs really matters. Again and again, MPs are standing up and saying "I have been contacted by my constituents who said to me..." It is absolutely vital that we continue to speak to our politicians. It is only through the...
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