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From a recent thread (2 days ago) on r/residency asking doctors what diagnoses they don't take seriously (I can't link it because the author deleted it): "A long allergy list is highly sensitive and specific for diagnosing a personality disorder" 813 upvotes Funny how there are hundreds of...

Depending on day or battery of tests, either no abnormalities or minor ones. Nothing comes out of it either way. That was many years ago, definitely not possible now. Researchers give you the shaft 99% of the time, after many years I have to say not worth it. Neurologists don't know where to...

That's not how it works. I was administered those tests many times and they are not capable of seeing my problem. They are like doing a standard MRI - completely useless for an illness like this one.

I will add a second thought: I tried studying my own problem out of desperation and I came to the belief that it was related to the anterior cingulate cortex, which coincidentally showed the greatest abnormalities in Younger's RMS study. I set out to try this on myself. Of course, every...

I will add this thought: I don't think that psychiatrists are to blame for my problems. They will not deal with my illness simply because it's not mental so it's beyond their expertise. Yes, there are a few evil psychs claiming that it is mental and they can cure it with magical words but I...

So, I tried to organize something - won't go into detail but you can assume it's documents. The effort I put into this, gargantuan and I feel like I'm dying. Never again. The person I'm working with asked if I take drugs because the way I organized things is beyond terrible. He is a friend...

Really bizarre claim, ME patients often have no mood because it requires too much energy to be moody. Even among doctors who think ME is psychiatric, I rarely hear about mood swings. Random symptoms being wrongly attributed for no reason, as is tradition in medicine...

ME research in a nutshell. Let's go guys, we will totally be taken seriously like this. I can't think of a reason why anybody would be skeptical.

Nice, at 82 years of age his career is just getting started so I'm sure he will have plenty of avenues to start studying ME, and he will totally be held accountable for his commitment

Even this happens, it doesn't matter. Once the patients are actually diagnosed, we can leverage on huge numbers and make stuff happen with advocacy, instead of having 90% of the patients undiagnosed and the other 10% chasing alt med bullshit because even to them the illness doesn't feel like...

I am "sure" of the clinical diagnosis when a team of ME/CFS experts screening for a study is involved, but those are very hard to come by so for everyone else a biomarker would be quite useful. In ordinary clinical practice doctors don't have the faintest idea of what ME/CFS even is, much less...

It probably would, given that only a few ME patients recover? So if you were positive for the test, chances are it would keep being positive and doctors would assume that also as they start seeing more and more patients. If the clinical diagnosis is predictive, I don't see why the biomarker...

In the UK and US there is a good number of doctors who, I suppose, are at least somewhat decent at diagnosing ME/CFS, after we exclude the BPS fanatics. But most countries aren't like that. Where I live, 99+% of doctors are completely incapable of diagnosing this illness. I have confidently...

It's a FND patient who got gaslit by grifter neuropsychologists and doesn't get the memo that outside those small circles nobody takes FND seriously (unless it's used to dismiss or mock patients)

Yeah other things have been ruled out. Man it's such a joke that any ME related problem never has a treatment or a solution...

I'm pretty sure his tinnitus comes from the brain not the ear. He doesn't have any hearing problems.

A friend of mine with severe ME has a very severe case of tinnitus, which gets worse with exertion (even minor mental exertion). He says it feels like a pickaxe constantly hitting his brain. Some nights, he vomits because of how severe the tinnitus is. He has tried seeing multiple neurologists...

The clinical model is a lot of wishful thinking and lack of attention to detail from doctors. If patients can't get solutions from seeing a bunch of specialists separately, how is it gonna be any different if you get those people together in a clinic and get them to do "clinical stuff". It's not...

I feel a bit ashamed that my country is right next to Germany and our government is putting exactly 0$ towards ME research. Our associations are absolutely terrible and do zero advocacy (they prefer self help meetings). They also worship doctors that claim 90% of ME patients reach remission...

Publishing studies to get their salary instead of clearly laying out the truth, that's what's going on. The incentive structure in medical research is broken, I'll keep saying it. It is absolutely ridiculous that after 40 years and so many studies published you still can never tell if something...