Search results

  1. RuthT

    Citizen Science Project - COVID-19

    Request for citizen science help with a project - for those with time & energy & wanting a focus: EtchACell Mitochondria Project, see:
  2. RuthT

    Question: Coronavirus & home sewn masks?

    Here’s an article about mask making, here for Heathcare Providers in the US (for people with secondary roles) with a pattern and a YouTube demo: I struggle to follow patterns ...
  3. RuthT

    Coronavirus - worldwide spread and control

    A link to a letter in Nature: “ Remdesivir and chloroquine effectively inhibit the recently emerged novel coronavirus (2019-nCoV) in vitro” https://www.nature.com/articles/s41422-020-0282-0
  4. RuthT

    Coronavirus - worldwide spread and control

    This news is, perhaps, encouraging:
  5. RuthT

    Cooking with Corona - coping with power cuts

    When I went inter railing decades ago we used a Trangia. Packed down & ours ran on meths. Is for outdoor use, so care & ventilation. Some sets have kettles, but now seem to be mostly gas. here’s an eg: https://www.millets.co.uk/equipment/114427-tg-27-1-with-gas-bur-multi-0.html
  6. RuthT

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    My MP, Fleur Anderson, is on board and went to the APPG. She’s also on the Education Select Committee, so hope she may also be helpful there.
  7. RuthT

    Cleaning tips and recommendations for cleaning products

    At the risk of the stating the obvious, it doesn’t do stairs ... fortunately a light brush is fine for ours.
  8. RuthT

    Cleaning tips and recommendations for cleaning products

    It was expensive, but I saved up & Christmas and Birthday presents meant I could buy a robot hoover: I found the floors the worst in terms of energy & also I seem to be v sensitive to dust. I’ve found it very effective on wood & carpet & quite companionable as it wanders erratically around a...
  9. RuthT

    Heart rate pacing devices - accuracy and responsiveness

    yes, have tightened up a bit. And am part of the Fb Groups too, v helpful.
  10. RuthT

    Heart rate pacing devices - accuracy and responsiveness

    I’ve very occasionally (x3 in 6 weeks) had some 0 readings from my Polar H10, which I’ve generally found excellent. As I’m still here, think it comes from when I twist or some posture that occasionally breaks the contact. Otherwise v helpful especially with an app that has an alarm for high HR.
  11. RuthT

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    A lot of CCGs seem to be members of this group: https://twitter.com/i/lists/93270391
  12. RuthT

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    Wonder if MEAwarenessHour might spread word @Michiel Tack ? Best if requests come from ppl in the relevant area.
  13. RuthT

    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    I saw that Kingston CCG had tweeted that they would ensure all GP Practices have a copy of the MEA Purple Book, following this recommendation by the Richmond and Kingston ME Group. So I replied asking if they would encourage Wandsworth CCG to do the same. I got a positive Twitter reply from...
  14. RuthT

    Fragrance sensitivity

    Thank you for this helpful info. could you say more about how what you use & how. Trying to find effective low energy cleaning methods.
  15. RuthT

    Real-time flu prediction may be possible using wearable devices - expert comment

    Twice now HRV has indicated something was brewing when to all intents & purposes I seemed ok, both subjectively and on other stats. About two days after, symptoms developed. First case flu, second shingles.
  16. RuthT

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Wonder how much notice of the launch of this was given to charities and groups as it’s not being extensively pushed through networks? I wonder if it coming out just as organisations started the Christmas break was not helpful re timing. will there be more active engagement & co-ordination in...
  17. RuthT

    Characteristics of Fatigue: Examination of passages from the Bible, 2019, Ben-Nun

    Most relatable New Testament passage for me, though am not willing to spend ££: “She had suffered a great deal under the care of many doctors and had spent all she had, yet instead of getting better she grew worse.” Mark 5.26. Woman who had haemorrhaged for 12 years. Sadly despite the...
  18. RuthT

    Immunoglobulin G structure and rheumatoid factor epitopes, 2019, Maibom-Thomsen

    So - relates to the *something in the plasma’ that Ron Davis got from his basic test of swapping healthy/MECFS muscles and plasma. It was the plasma that showed *something*. The big question is *what* Ed Corrected spelling of ‘Davis’ and punctuation
  19. RuthT

    SMC: Advice for Researchers Experiencing Harassment

    I know this doesn’t go anywhere near are far as it needs to, but is perhaps marks a turn in the tide. Also see in that thread Cochrane stated future commitment to patient engagement, hence renewed efforts here to discredit.
  20. RuthT

    SMC: Advice for Researchers Experiencing Harassment

    Interesting that it comes out following Cochrane news ...
Back
Top Bottom