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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    The fund is up to 78%. Its great to see the revival of the last few days. I like to participate at this time every year so will make my final donation tomorrow.
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    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2020

    I hope there are many more like myself who haven't yet donated. I fully intend to and will do tonight or tomorrow. When the fundraiser is coming close to the end I want to feel I still can do something and that is why I wait. I cannot imagine what it would be like if we did not have David Tuller...
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    Coronavirus - worldwide spread and control

    I had a carer here this evening to prepare a meal. It was hard work getting across the kind of hand washing needed . I did a demo in the end. When she was leaving she mentioned that she had been in Tesco, Lidl and Aldi.3 major supermarkets and that they were All packed. She said it was like...
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    Crossing Chiari and syringomyelia off the list

    Is this a new symptom for you.? You give a good description of something going on in my neck and head recently. I had over past few years noticed difficulty and discomfort when turning my head from side to side. Two months ago I started getting shooting pains up the back and sides of my head...
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    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Thank you Trish. Your letter is so good and explains so clearly the harm caused by GET and the reality of life with ME. It must have taken an enormous amount of your time and energy to put it all together. I really appreciate it. Thank you for this and for all that you do.
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    Swollen area on upper thigh

    I'm sure that ye will have thought of this yourselves but Ill mention anyway. Try to get first appointment morning or after lunch. Explain The situation and ask secretary to ask the dentist if this is possible. My dentist has once done an 8.30 am appointment for me. I have found my doc and...
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    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    I remember 10 years ago also. And of course things could be worse but I'm not exactly thankful that things are not worse. I believe that they should be a whole lot better. Can we say with any kind of certainty that meditation helps the majority of people with ME.? I don't think so If one has...
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    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    I seriously question what they want to provide. We are not stupid but neither are they they. This is lazy, useless and insulting. People are waiting for decades and they have their finger in this pie for decades also. If this is the best they can come up with they should consult with the patient...
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    Panic attacks or crashes?

    I imagine strength training could be severe on a person with ME. Could your blood pressure be dropping and your heart rate increasing as a compensation. She thought it was a panic attacks but felt it was related to something physical. She was lucky to find a doctor who recognised the...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    You are indeed using gentle terms Strategist. I can't even think of terms that would do them justice. The harm done is incalculable and they continue to perpetuate it with clear intent and determination. That they continue to do this and that the media don't look under the rocks astonishes me ...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I thought it was finished tomorrow night must have been getting into a bit of a panic. 2 days is even better. Its going really well though. It is very like a race .
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Good to see it going up like this. Put in my donation today..We have a bit more than 24 hours to make 4%. 2744 dollars to go... Hope springs eternal... Great that it is so close to the goal.
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Thank you Mady Horning. That is wonderfully generous of you and we are so delighted.
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I'm waiting too. Hopefully many others are waiting. I wanted to donate for the double donation but due to bank error I couldn't withdraw money. By the time it was fixed the money had been doubled. . I'll wait until tomorrow. It is great to see that money is going into the fund all the time . I...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Huge thanks to Erica Verilla for doing the double donation. It was really generous of her and gave a great impetus to the fund. Getting it over the line seems much more possible now . It is getting close anyway.
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Could this be a blessing in disguise?. Can people respond in comments to new York Times. David Tuller gets a chance to get into the main media . If a few people in high places were to respond it might make an impression on some of the journalists in the UK and go someway to discredit the...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I have a donation which I will make at the weekend..i hope they will speed up again for the next while . It has flown by and we still need 40 thousand. I kept back a bit when I made my first donation as when I feel It's getting tight I like to feel I can do something and I really wish I could...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Could the crowdfund for David Tuller be put on front page of forum for this month.? I'm sure it is on everyone's mind but just in case it would serve as a reminder to all.
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    David Tuller - Trial By Error: This Year’s US Clinician Summit

    They rejected these modalities as "inappropriate and potentially harmful." This is very mild language in my opinion. Data was manipulated to bring about specific Results and the damage is incalculable. It is enormous, brutal and the price has been too high for so many. I am glad to read all...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    This is money Im happy to give. Im so glad you are staying on board ,it would be one of my worst n ightmares if you decided not to continue this work. So thank you for raising the money whatever way possible. I like that it is this way . You give so much of yourself and your commitment has been...
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