I'm afraid I don't know where to put this but Graham Linehan who wrote the comedy Father Ted has tweeted this article conflating the ME situation as outlined in the article with trans activists threatening doctors and surpressing science that does not support their cause.
He has 650,000...
I can't imagine that she has ever met a child with severe ME. A child in this category may not be able to sit up at all, walk at all, raise her/his arms, bear light or noise , may find light touch very painful and host of other difficult symptoms. I have never come across any indication that...
This is an intentional strategy which has been very well planned and carried out by them which makes us look very bad in the public domain. And it seems that they plan to use the same means to discredit David Tuller himself . It is unlikely that they can attack the content of his work but by...
Thank you so much for this. I'm always so grateful for your role in bringing the truth and illuminating (time after time) what others would keep murky and dark. You are invaluable to ME sufferers everywhere.
We are so fortunate to have you using your very considerable gifts on our behalf and...
I know exactly what you mean. I've had this many times. Enjoy your short reprieve. Last week I got the flu vaccine as I have asthma which really plays up with the flu on me. I thought I would have headache but instead I had a very good day (the day after vaccine). I had one of those rare free...
Thank you so much for all you have done and are doing. You are a beacon of hope for us and I have huge appreciation for your work,and realise that it is a nightmare of a battle.
They really need to look at the reasons that so much trust has been lost and start with some incisive self reflection and honesty. I think it wil be impossible to regain trust without this, they need to call out colleagues and practices who and which have led to their reputation being damaged...
This is extraordinary. 20 years. There is something seriously wrong in this profession if this went undetected for so long. Did she not have regular professional conversations with her seniors, those in charge, her colleagues nurses etc.? Her not being properly vetted doesn't come anywhere close...
I feel normal for a day, much more like my old self. It feels great and when it happened the first time I thought I was getting a reprieve. It only happens if I am getting the flu,and then I am back to hell again. I've had sore throats kidney infection and other things but they come without...
Has she been tested. For Lyme disease. I'm asking because babesia is usually listed as one of the Co infections of Lyme disease. It looks like a good list of test and I hope they show up somethings that they can work for her
This is so worth listening to. Tells truth about Pace trial , name changing that is still going on., and mentions conclusions that very uncaring societies might well reach. I find it scary, we certainly need David Tuller and many like him to break down the thick walls of intentional...
I can't get out at all. Food is online, clothes online and I get the occasional taxi to pick up prescription for me. I used to ask (again occasionally) friends, family and neighbours to get something for me. The chats when they delivered were too much so I rarely do that now. It is impossible to...
A neighbour of mine, she does not have ME, had similar symptoms recently. She was under some stress and she and many well meaning friends put it down to the stress. She had Lost one and a half stone and was having difficulty with all food and drink. One visit to the doctor sorted her. He...
I'm so glad to see these videos here. It is so important to see 2 honest medical men of integrity and high calibre give an honest and well researched opinion on childhood ME which is such a devastating illness..Both have extensive experience in this area and this is obvious from their...
I can understand about the lack of treatments at present but surely this new on site information is more about creating understanding about the condition and the symptoms and difficulties that it causes. I don't think it is enough to just change the info on site. A very great d eal of damage...
I agree totally with last post. Im Sure most if not all of us overdo it if the feel good factor rolls in at all. Just by doing what we need to on a daily basis without any frills is for most of us overexertion. We need good guidance on not overextending, actual scientific help to do this. I...
I was not keen on the voice of patient section, in fact I'm sick to death of this attitude. It is probably a bit better but there is something that makes it sound a bit like a' light 'form of disease. It's the way people treat us. I also feel that the same attitude is present in Dr Faith...
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