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I share that perspective. I can never know whether I had an infection at onset, but I had no symptoms. It started during the glorious summer of 1976, when I had a gap between jobs that meant I could spend several weeks outdoors enjoying myself with friends. From late summer I started what was a...

I meant natural nails as opposed to acrylic ones. A lot of people wear these for some reason I've never been able to fathom (along with spraying yourself orange, walking about with what appear to be caterpillars on your eyelids, and making your lips look as if someone recently punched you), and...

I can just as easily envisage it as a treatable chronic disease, a relapsing/remitting one, or a one-shot-cures-it—though the latter's the most difficult, because disease always seems to leave a mark somehow. But even if we never got beyond it being a treatable chronic disease, that word...

Yes, but what do you mean by CFS I wonder?

I think my reactions are fairly normal. Many things are okay-ish and a few really aren't. Worst reactions were to methotrexate (taken off it due to toxicity) and antidepressants (which used to be prescribed to people with no depressive symptoms in the hope of improving ME/CFS). The only...

Whatever they call it, it'll be interesting to know what proportion of the total cohort developed ME/CFS and still met PEM criteria seven years later.

I think it might be the number of cells? So they first identify a cell in one patient's sample that they think is a rotten grape, then look for other rotten grapes that sample contains. Those all go forward to the analysis stage, but they're all from the same patient—and the AI model didn't see...

My experience with metal boxes (otherwise known as caravans) is that even the insulated and ventilated ones are insufferable in a British summer. I wouldn't much fancy being inside one in Australia, with the mercury showing nearly double the number of degrees we get here. Wooden buildings...

If there is no recovery period, either the drug has worked or the individual is still pacing and doing no more than they were before treatment—which will need explaining. If there is a recovery period, and it's no shorter than it was when measured pre-treatment, the drug hasn't worked. By...

Broke a nail at a friend's today, and she lent me her diamond file. It feels a bit flimsy, but the file's actually very good—just the right grit for natural nails. It says Viva Instruments on it, and she bought it online direct from them.

Is it not possible to soundproof and lightproof your room in the house? Obviously I don't know your situation, but it would likely be cheaper and easier to do this than build a separate structure, and you'd also have a toilet and water supply closer at hand.

The idea of how much you can recover from—rather than how much you can do—is such a good way of expressing it. This should explicitly be included as an outcome measure in trials, shouldn't it. Measuring how much activity people do after treatment is obvious, but I can't remember anyone looking...

Bit of good news for people on means tested benefits: https://www.bbc.co.uk/news/articles/cedw468e50wo Qualification should be automatic as long as you're entitled to one of the benefits and are with the same energy supplier when the discount is applied (usually between October and December)...

They're not sure yet, but it's possible. But age is unlikely to be the main factor in that, surely? Immune cell populations seem to change all the time, for any number of reasons. I'd be surprised if a low NK count during one time period automatically means a person always will have a low count.

Not in the mid-70s when I became ill with ME/CFS after EBV exposure (via my boyfriend at the time). Or in the mid-80s, when a close relative was diagnosed with glandular fever. GPs diagnosed it on symptoms. It was just thought of as a common illness in teenagers, no one seemed to worry about...

Not necessarily, I'd have thought. Immune modulators are usually used with the aim of reducing some aspect of immune function, or shifting the balance.

I'm not very clear on what 'children' means in this context. (The claim about greater likelihood of recovery mostly seemed to be about children rather than young people.) I assumed it meant children who haven't yet gone through puberty, but I don't know why or where that impression came from...

I don't think there was a problem in the first place, so there's no need for solutions. We start with a simple enough question: can this publication tell us anything, or not? Answering it is a practical task, not a philosophical enquiry. We're in too much of a hurry for that.

ME/CFS devastates the lives of millions. There are no treatments. Doctors neglect us. Help us find answers. ??

My dad always favoured drivel. Mam often went for "It's all my eye and Betty Martin".