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Well, partly because people with ME/CFS know that discussing it is not only a dead loss, it might mark their card in a way that affects how medical professionals view any symptoms they present with. I haven't mentioned it in at least 10 years, partly because there's nothing they could do...

Maybe there are more questions to explore? For instance, do people tend to feel better or worse after sleeping when they're ill with a virus; and are people who get a lot of immune-type symptoms more likely to complain of feeling worse after sleep than those whose ME/CFS is dominated by other...

For the record, I've never experienced that! Sleep is very much an event, one that leaves me feeling exhausted and ill. Clarification: it leaves me feeling much more exhausted and ill than before I did it.

It probably is when it's not caused by medication or things like joint stiffness. Same with alcohol intolerance. They're funny symptoms that stand out.

https://www.stainedglasscraft.co.uk/product-page/imperial-diamond-hand-file

The little hand file has arrived and is very good. The grit's extremely fine, very similar to a glass nail file, but should last much longer because it's coated with industrial diamonds. It wouldn't be good for reshaping completely ragged nails—you need at least a 180 grit for that, and this is...

It could be coincidence though. I remember when MS was thought to be triggered by pregnancy, but it was probably more that women mostly develop MS in their 20s and 30s, and also mostly get pregnant in their 20s and 30s.

+1! It's really quite depressing. ETA: on cognitive function alone, the difference between just before bed and the following morning is hard to describe. Like someone who can do tough cryptic crosswords, then nine hours later can't work out how to find out what day it is today.

Yes, I think it was a good lead-in for people who've no experience or knowledge. Especially as it widened the frame beyond Britain as well as deepening it time-wise. After that I got less and less sure, but still think it was a net positive in terms of awareness and credibility. It gave out a...

Ohhhh it is for me! If I don't sleep at all due to severe PEM, I feel okay (for the first couple of sleep-free days at least). The more I sleep, the worse my function is when I wake up and the longer it will take me to recover. ME/CFS-sleep is an activity that makes me more exhausted than...

Is it possible some researchers haven't done a great deal more than that?

Mostly terrible. Though if I'm lucky enough to get what I call normal sleep (the sort I used to have before ME/CFS), I feel refreshed and ready for the day. But it doesn't happen nearly often enough!

They did the section with Danny Altmann. It's roughly between 07:02 and 14:40.

Yep, a great opportunity to save time and money. Maybe they should do it like the adult autism service. You got your diagnosis, then they asked if you had any questions, signposted you to groups and sources of information, and invited you to call them if you needed support with anything...

First response was that patient needs don't figure anywhere in this, do they. It's all about service providers's needs. But then... A service that only offers diagnosis probably has it about right, doesn't it? There is nothing else. Nothing a GP couldn't offer, anyway. Though I remain wary...

I don't know anything about TRPM3 or lab techniques, but that's a very striking graph.

I don't think so; I certainly haven't. I thought the article was rather ill-advised, but I can see myself doing something like that at one time. It's been a long learning journey and the distance I've travelled is huge. I thought the survey was an excellent piece of work, and the way you...

Yes, it doesn't really sound like retinal migraine. That's most commonly in one eye only, whereas classical migraine auras seem to involve both. I feel lucky in that I've never had any sort of migraine other than retinal, and while some folk get pain and other symptoms with it, I've only ever...

To be honest I only looked it up because wanted to know what astrocytic vascular endfeet were. The pictures didn't disappoint, though I still think the name is a tautology.

Is it possible the movement is only one way? It's just that the diagram suggests CSF goes in via arterial spaces and exits via venous ones—but interstitial fluid is only shown on the out route. (The diagram's got nothing to do with this study tho.)