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Can somebody tell me if this is still by IV? I would love to do it but I cannot TrackR twice a week 3h to go get it. Does anybody know what the current protocol is?

Well we can join forces with the ME organizations against mindfulness fraudulent reasearch, and any other disease they try for.

we here in USA we will make noise for you all guys :) We don't have much going on.:thumbup:

I get remissions with viruses too. Is very interesting. Colds (in the rare case I get one) and I had Zica twice and went kareoking Before I knew why I felt so good!

I struggle with the same, I believe ME describe my disease (I do feel the inflammation on the spine and brain) so I don't care who says we don't, I feel it. But I am afraid plp will not understand ME name only.

I have the feeling if this were to happen, we need to let everybody know (:balloons::balloons::balloons:doctors specially) and we will be so happy that we would take over tweeter and half of social media@!! we are a lot of plp.

Here is the thing, we have to be careful as a community what we ask for. Becuase if we get mangement of symptoms not to become worst, what does that mean on the realistic side for the day to day= Does work have to let you work only 2h a day and not fire you for not being disable. How do we...

This is a pet pieve of mine becuase I would be cured by this I can do X again. Cure is go back to pre illness ability to generate energy and not energy management needed. Live is not designed in any way for energy mananagement. So we shouldn’t have to. If you do not have legal standing, how will...

What I am seeing is a campaign to rename the disease ( also saw something on Dr oz and other paid airways. 1) Are all this plp / tv shows/ magazines.. that never gave a crap allOf The sudden care and all magically now call it SEID and in such a short time spam. 2) if there is a educational...

Not to Mention to do a service to a group they harm for so Long by the standing of the bad one!! This is such a good comment! Please make sure to leave it also there please!!

Do they mean the one submitted was old and out of date?!?! Also, are we mounting tweeter pressure?

Very conveniently a Friday. We have to be very vigilant

She explained it, everytime she gave the neurotoxins ( I think it was or pesticide?)then stress them. Did that a few time and bang they have GWS (

I actually got two remissions with his vitamin powder ( but distroyed my stomach) is called from fatigue to fantastic revalitation formula. Some plp said that some plp hd heart stopped or death. I don’t know the truth of that but I love their powder!!! Takes about a month to work and I was back...

OK I see the issues, so where do we go from here? how do we get the comment on all links, how do we make sure the review is answering all question? I know a lot happens in the background but is there something going on we do not know about from the ME groups??? How do we know the BPS group is on...

I am confused with what is going on. So it is temporarily pulled the review? But why the posts that it won’t be pulled??? Can somebody in plain English summarized what is going on?

Dont we even have a technicality like false representation ( they did not disclose the ties) I am sure that somebody can come up w something. Insurance fraud charges... we don’t need it to stick we need noise and make their life hard. Let me see what I can get together. I have seen crazy people...

Until this poeple don’t get taken to court for bad science and fraud we will keep in this situation. We need big guns and being aggressive and bring it w all we have. Take advantage of the momentum. This is where history and a difference is done. They cannot take it down until the NICE review is...

Why can’t we lawyer up too?

OMG Mct oil has been a game changer. I think even if I ever stop keto I will use for Cfs. I get energy and head clear ( not brain fog difference, just smarter). I heard a user get worst on food sensitivity due to mct oil. And some plp get allergy like and tummy upsset in the general population.