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Here is the thing, if you analyze this whole thing, it all goes around the same one person if not 3 tops, so we need to point that out, and zero out on the real culprits of this debacle, the rest are just puppets, we need the puppeteer down.

please click to give traffic to good reporters so they do more articles pls!

I am one of those that get remissions with viruses/ colds. But I revert back to Cfs once infection is gone. I had Zica twice ( not sure how that is possible) and got remissions and felt the momment i switch back. Same w colds, I can tell inmidiately when virus is suppressed, I get that Cfs brain...

Can you ask for a referral to an electrophysiologist (they treat OI).

Check your electrolytes, when you get the shake means you have over done it and might be imbalance on electrolytes (is my case anyways)

There are tones of drugs and the type will depend on your symptoms (high or low BP) you have vasoconstrictions drugs (or vasodilators for those who need it), florinef (volume add meds), beta blockers (for high heart rate), Calcium channel blockers, Ivabridine,.... Takes a bit to get the right...

I do not pass the Romsberg test, what do you do if that is the case???

OMG this is perfect for a goo illustration of the resicouless of it all!!! Sympson gets CFS and get GET and CBT!!!!

I am on a good Cfs stage where I am mostly in remission must of the time and what I can tell is when I feel inflamed. Cannot tell you what it is, but I even get bumps in the head. Ussually on the top left or right. One time I had it on the forehead pretty obvious. Some plp tell me my face swells...

This happens a lot on ME also, and some other brain disorders. Like what is common in this people where they get retained. Are they testing drugs on them, or do they have something unique?? Like we need to dig why they get retained, what makes them different.

But why the ME patient? I just wonder if we need to dig deeper and find a commonality. Are this plp being used to test something, what makes them target?

Since the CDC updated the website, can it be used here a reference??? Just a thought.

I forgot who here was that can write / publish papers, but can we like detail the workwell foundation study and recommend as test for CFS/ME??? I think we need replication or more literature so other sites will accept this as acceptable testing. So we can move forward and have at least this we...

this should be in his tweeter :). If we call on plp in private we don't gain much.

I am sorry for being thick but can you give me a summary as if I am a 2y old. So they have CFS under bodily distress syndrome? where is ME under?

You are right, I had bone crushing fatigue at first, now 12y in not so much (except certain times of the day) but I do not have more energy at all, My PEM is as bad if not worst than when I used to be so tired, and the health issues get more serious with time, like at first was some symptoms and...

Something interesting I just remember, before I got sick sick ( so I was gradual onset and before I knew I had Cfs) I remember going to gym and I could not raise my HR over 120, I remember the target for me was 145bpm and I would run and try to achieve fat burning zone and was not able to.

So what happened with ME and cfs in the new classification?

Something interesting in my book= When the patients were “Crazy militants” they paid articles and the news papers, did the dirty work. For each bad article ME community had about PACE, 5 “good” would come out! They were on top Of it( as if they paid or had friends in line for this crap). But...

Or MAYBEEeeeeeee they are working for the dwp ( whatever your insurance for government is)?