Search results

Yep, will be available both on facebook and we'll upload to YouTube after. Gonna be a fun experiment getting all this video conferencing and livestreaming to facebook simultaneously to work. Wish us luck :emoji_fingers_crossed:

JOIN US ONLINE OR BY PHONE – DO NOT COME IN PERSON. We are now asking all attendees to please not come in person on Monday, but instead join us online or listen to the talk by phoning in using your mobile or landline. All details below. Whilst countries across the world are taking stringent...

We're still on. Really pleased that despite Dr David Tuller being unable to travel from America due to coronavirus, he will still be giving his talk on Monday 16th March at 2:30pm UK time through a video link. You can still attend the event in person if you choose, or join us online as David...

This looks set to be a great event, fab you've got Caroline speaking. Is there any chance anyone would be able to livestream it? I'm sure members of Sheffield ME and Fibromyalgia Group would be interested. (All that's needed is a phone, Facebook page and some sort of tripod plus gaffa tape if...

David Tuller has kindly agreed to return to Sheffield for another lecture, this time on Medically Unexplained Symptoms. Grab a free ticket on facebook or through eventbrite: https://www.eventbrite.com/e/medically-unexplained-symptoms-shaky-evidence-shaky-practice-tickets-90962367891 As...

Motion passed - shockingly http://www.pulsetoday.co.uk/news/gps-vote-for-home-visits-to-be-removed-from-contract/20039743.article?utm_source=Pulse Views Newsletter Not much comment on twitter but what I can see on the whole seems to think this is a bonkers idea: Edit: On a personal note: I...

Tweet from Keith at 3:51pm today (Sunday 17th 2019) saying: Glad to hear they've had a big response, really hope they've had enough input from those with severe ME, and that those who want to have had enough time to respond.

Aye looks like there's a save button, but this doesn't appear to give you a link or anything to go back in later, so I'd leave the tab with the survey open and not close it down in between trying to work on it.

Impressed you got through it! Not you, name and contact details aren't asked for - I presume they've just used some standardised GDPR questions. Have pointed this out in an email, as well as asking whether the questions can be made non-mandatory as sadly I do think it's very inaccessible to...

Perfect! Cheers @Michiel Tack

Just having a brain freeze: can anyone remind me where it was said that they changed the recovery thresholds so they were more in line with other studies? Thanks!

Aaaand Q&A up on YouTube too:

Q&A on now:

Youtube version here: Unfortunately it missed a couple of minutes in the middle, after which the video went out of focus and despite best effort we couldn't get it back, but you can still hear him clearly. We'll ask for his slides and upload those as soon as possible too. Q&A starting shortly!

If anyone has any questions for Brian, I can get them to be asked in the Q&A session after his talk if you post here before about 3:45pm.

Starting now! Watch the livestream of Professor Brian Hughes talk on Facebook here:

Bump - starts at 2:30pm today. Will post link to livestream when it goes live.

Great to have another overview and pull out some more quotes, thank you @Michiel Tack, and ditto re thanks to @Tom Kindlon for all your doing to amplify respondents' voices further. Two clarifications: The question about pressure to undergo certain treatments was only asked of those who had...

Yup, I'll upload it to the group's YouTube channel afterwards.

This Thursday 24th October: Autumn conference, with guest speaker Professor Brian Hughes from 2:30pm All welcome, or watch the livestream on Sheffield ME And Fibromyalgia Group's Facebook page: https://www.facebook.com/SheffieldMEandFibromyalgiaGroup/ Prof Brian Hughes is Professor of...