Search results

Yes! To this and @Invisible Woman

@Barry Perhaps our aerobic systems just don’t properly turn on - so we are still deprived of O2, but don’t get the breathless bit so much?

As I understand Workwell material they see two periods of anaerobic respiration during exertion/exercise. (Trying to explain simply here for benefit of all reading ;) ) 1st - On changing from resting state to exercising state. The muscles must tap into anaerobic respiration until such time as...

In my own experience, my co-ordination issues are one of the prime ways that I make a judgement on whether I am struggling M.E. wise. I always slow up if I notice any of the following: Slow eye focussing speed. (Far to near most obvious). Momentary loss of balance, requiring me to “reset” by...

My healthy husband has just done the test and got similar results to me. We both thought the numbers continued to go up after the screen had been tapped so the delay was the iPad or internet, and not the subject’s slow responses!

Very interesting. I thought I was quite good at the test! Apparently not! (Although, I do wonder if internet speed may affect results? Our internet speed is rubbish.)

I think there is a difference between what all patients would love to happen (and even aspire to), and the prescriptive intention to push for “increase”. Which I think is what you are saying in your last paragraph @Esther12 If a better balancing of exertion leads to fewer symptoms, and that in...

And that will only happen once researchers with a vested interest in a fatigue approach are weeded out of the research pool! So difficult to always have to scrutinise for the faulty assumptions, data misinterpretations, and over-hyped conclusions, in their stream of publications.

I spoke to a lady recently, who said she felt awkward talking on patient groups about how much GET had helped her, because she realised other patients disliked it so much. She said GET helped her a lot! We talked some more, and it turned out the advice was really Pacing. There were a couple...

My view is simple: If the aim is increase, then it is GET. If the aim is stabilisation, then it is pacing. This distinction does not prevent natural fluctuations in activity levels. So, the pacing folk could still have a fortuitous period of increase. However that increase would not be the...

That statement feels wrong. :(

This is excellent cover when a group want to slide some dodgy stuff through unremarked. Set the organisation up as denouncers of all poor science. Throw accusations at “unsound” research. Establish aname. Then if they, and other “independent” organisations, declare a certain type of research...

Thanks mods for the font size correction - not sure why it was that size in the first place. Maybe I used cut & paste??

Just found this thread this evening. So I know what I’ll be doing tomorrow. (Too sleepy to watch videos now ;) ) Thanks Amy - much food for thought.

How well does COI policy on NICE GDGs work in reality?

And that might be roughly the reporting bias, you might expect from patients knowing they are getting “the treatment” ! (Actually I’d have guessed it would be higher, but there you go :) )

This may be of interest: Managing Conflicts of Interest in the UK National Institute for Health and Care Excellence (NICE) Clinical Guidelines Programme: Qualitative Study...

Perhaps it’s a sort of catching up? No diagnoses for years, then an awakening of the ME situation and so the rate of dx seems higher as long-standing patients at last get the dx they deserve?? Edit to add: Or of course over-dx by giving every tired patient an ME dx !!

I seriously question that anyone takes “too much rest”. Frankly, in my view, people will tend to get up, and try to do stuff so long as physical well-being allows it. (The only exception to this is perhaps clinical depression, but that is a different issue.) MUCH MUCH more difficult a thing...

Thinking further, the BPS folk don’t trust us to do more spontaneously when we are able. They assume we will happily stay sluggish and slow by choice. I wonder are they, in reality, projecting their own lazy attitudes on to us? It seems to me they are the ones who are too lazy, or invested in...