Search results

Such smoke and mirrors, we are trying to find proof still to this day of what is wrong with all of us, and we still don’t know.

We are a little off topic but a few years ago Ron Davis was very publicly saying that publishing paper was slowing his work and that he wanted to push on the research, just not publish. At the time he wanted to develop his nano needle, and the capacity to test hundreds of samples at a time ( as...

It is also risky to trigger PEM, because that can result in long term worsening. There is a need to find bio markers that do no harm. I too feel shitty all the time, no good and bad days. Edit: I am not slamming researchers for studying PEM nor do I slam patients choosing to enrol in a PEM...

I would not be too happy if certain individuals were involved in teaching said course, for instance, Clare Gerada, or Trudie Chalder or any of their contacts. Who is presenting the information and what are their conflicts of interests matter a lot.

@dave30th for you.

(Oh the irony) More than 30 people who attended a conference organized by the CDC's "disease detectives" likely were infected with COVID-19 at the event last week, the agency said. The CDC hosted the 4-day conference that started April 24 at a Crowne Plaza hotel just outside Atlanta, which is...

Yes, you register, and they will send you a link to broadcast. It’s free. The line-up of presentation is very interesting, however the time change is very unfavourable to me.

Just a couple of comments on the latest update here in Canada. Dr mentioned in the news coverage provides DNRS program for $$. (DNRS is brain retraining) and nurses in BC- they are currently voting on a very good contract offer from government, limiting nurse to patient ratio and wage increase...

I wold hate spending any precious money on researching these. Just like for PACE trial, plenty of opportunities for bias, for vested interest, for enrolling fatigued patients and other issues with trial design and interpretations. I am reminded that Reid berg has obtained federal grants for...

*i did not read the paper* Re whether psychological therapy is helpful, I would suggest that transitioning from an active and productive life to the deprivation of that ME brings (disability, great difficulty with self-care, often time financial care and dealing with family and health care...

I am not saying the study is not valid. However I note that their conclusion is So they assessed this one assay, from next day delivery and testing. I would have been curious to see whether results were exactly the same comparing to commercial lab (I believe it is Quest lab) or Dr Fletcher's...

You realize that this article is a sales pitch aimed at both desperate patients and greedy physicians who are tapping into the wallet of said desperate patients, right? it is all about make-believe that their point of view is superior than, and that they have the solutions. And patients must...

And then they went for the immigrants with MUS. :banghead:

I several years ago I travelled by plane for health care and I remember feeling a horrible crash that built as I was driving to the airport and that continued while sitting on the plane. The worst feeling. Then when you land, you have to drive yourself home. I would not appreciate being stuck...

For me there has been pressure to visit on the other side of the country, and from my point of view, the travel is a major problem, plus the talking, plus exposure to sound, plus the time change, plus the stairs involved. and then I have to return home. While I can do a few things during the day...

Sorry you need to compromise with your spouse on this. I totally understand not wanting people around when you are struggling just to be up and attend to your personal care. Covid have been a very good reason not to have people here, and it has provided a good excuse to have people here. Now...

Oh yeah? What kind of approaches? Yoga? Mindfulness? Meditation? Lying to the patient and telling them everything is fine?

well you know, she gets a decent amount of money from your UK funding body already. and she wants more for herself.

Association does not mean causation. We do know that POTS is disabling, so it is not surprising that patients are unable to work therefore are in a more precarious financial position as general population. Edit to add: same for schooling. If patients get POTS young enough, there are increased...

Yeah my finger tripped on the "post reply" early- The post has been updated. I am curious about the "age-rassociated B-cells" and wonder whether @Jonathan Edwards has studied this B-cell population.