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The best question to ask is. What would want to do if you were cured? A pwME/CFS would come up with a 50 items bucket list A depressed person would come up with: I don't know

Can't be the first or third just because I'd never heard of them. I could have mixed it up with ME Vereniging Nederland though. I apologize and thanks for pointing that out @Dolphin

Years ago this club really lost me. Only patients that could not lift a tea cup were the real ME patients. Seing a connection with polio, they said. The rest of the ME/CFS patients suffered from a "fashion" disease. I could lift a tea cup. Ouch!! Who needs enemies with friends like that. When...

Deficient oxygen supply can impact production and response to interferon. BNIP3 (hypoxia-induced) and NIX should be regulated by FBXL4 to restrain mitophagy. DecodeME said not enough FBXL4 @SNT Gatchaman recently posted about it, in FBXL4. Sorry I'm no good at copy, paste. When I go upstairs...

Oh, they tried, called it an "overlay of FND".

Is it not about time the 1994 criteria should be abolished in research that is said to be about ME/CFS . Prof. Rosmalen should know better criteria by now.

After DecodeME Carson and peers are yesterdays's news, used as today's bin liner. Whatever ..... ception he uses, the only thing that's left is his, and their deception. Shamelessly hurting us all, knowingly.

BPS needed a whole year to react to the Wüst group findings and, even after a whole year of thought, were reprimanded by the Wüst group for their inaccuracies.

Priority funding for this kind of research!!

You might add bravery to your list too, in my opinion! And not believing in it so much either, it must have been quite a leap of faith. Sorry to hear the trouble you still experience in the mornings.

The study by Chris Armstrong and his team seems to be de-prioritized. See quote of the SIMPLE study in ME/CFS Science quote above.

In an interview Systrom showed a video of a participant step on step of fas challenge. Causing a "little PEM" he says. It would certainly get me to PEM. I could not do that in the same tempo. That's why I am a Turtle.

In some people it will work not in pre-covid ME/CFS.

In psychological terms inconsistency can get someone diagnosed with FSD. Making a quick income supplement from zoom conferences may be functional too. Gives Illness gains a totally different meaning

Bottomline for UWV. They were so afraid of people cheating that they themselves cheated all ME/CFS patients out of disability claims.

I used my CPET outcomes for my disability claim, no one ordered me to do that. I needed objective data: CPET provided that. Letters from 3 doctors did not help. My own words did not "prove" anything.

How can psychology bring some epistemic humility back into their own profession especially CBT. "Don't deny an illness like ME/CFS in order to try to "cure" it with therapies that hardly work at all.

There was a 3-step procedure. First UWV, they stood by their own decision 20 hours a week. Then appeals court, that decided, in short, UWV had to do their homework again, in doing that they considered my objections again. An objective CPET-test with numbers does not allow talking up the numbers...

As a client of UWV I had to prove, objectively, why I could not perform like a healthy person. That's really difficult with ME/CFS. Untill this courtcase no proof was good enough. In my case UWV messed up so I would probably have won, but with courts you never know for sure. I already got my...

I was one of them, back in 2008. Waiting for an appoinment at this same court UWV restored my disability claim. On CPET I could not even get to 40% VO2max and still UWV tried to have me work for 20 hours a week. One argument to downplay my CPET was that my bad leg had not been measured. (???) I...