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That was fun with a lot of good info covered:thumbup:. I did worry towards the end that the water might be stone cold:woot:

Email to MPs sent. I think the report is very good and carries more weight because of the foreward by Prof Peter Doherty.

Just saw this in the local paper - The Age. The author defines the difference between tiredness and fatigue and talks about LC and CFS. Just the usual guesswork really...

My son repeated this little biochemistry department maxim a number of times when he did his biochemistry course years ago: medicine is what you do when you can't manage biochemistry.

An alternative diagnosis is on my mind a lot. Even 35 years after a diagnosis of 'CFS/FM' I won't be able to accept it until there's a definitive biomarker.

Same here. I don't mention "chronic fatigue":rolleyes:. It would muddy the waters and would be a waste of time anyway.

Congratulations @Mike Harley. You've done a wonderful thing. Thank you.

Well that should keep them churning out crap for another few years at least. Unbelievable. They have no ethics and no shame.

I recall walking along a very busy city street in 1972 and looking at people walking past me, all seriously intent on going somewhere. The thought struck me that if they felt as terrible as I did they wouldn't be there. It was the first brief glimpse I allowed myself of my own reality.

This is my experience too.

This is my experience too. My neuropathy has been described as idiopathic. The only medication that is tolerable and works for me is codeine + paracetamol (acetominophen) but I can only get a tiny amount of that from my doctor. So before I get into bed I cool my feet in a bucket of water I...

Congratulations @Michelle. I only just came across your essay. It's great:)

And there's a lot of gravy at the end of that train journey with loads of excited young students buying tickets for a their trip to the psych industry town of Bullshitsville. It's never going to end, is it:(

It must feel as though you've had a bit of a baptism by fire @SNT Gatchaman but please stick around. I've found this thread interesting and informative and I have no doubt the vast majority, often silent, have too. Edit: Ooops - I spelt your name incorrectly

The above link didn't work for me until I disconnected my VPN.

Beautiful poetry. Thank you!

I wish I hadn't clicked on this. Maybe one day in the future human beings will look back on such gratuitous, pointless, barbaric practises with horror. That's if we make it. Maybe the rats will have the last laugh.

Yes, because of my ignorance about things medical, I have no choice but to be mistrustful of everything and everyone. Therefore people like me effectively end up taking calculated risks. I've had a bilateral mastectomy so fortunately breast cancer is one less health threat to worry about in the...

The Jean Hales Foundation is a highly respected resource in Australia. It conducts courses for doctors and so on, and collaborates with research teams in universities and hospitals.There's info about everything you could want to know on the website. Re breast cancer: “In terms of general advice...

(Very gradual onset ME for around 50 years, mild for the first 30 years but always getting gradually worse with no remissions. Also supposedly fibromyalgia, and significant widespread joint deterioration which also started 50 years ago.) I've been using a low dose HRT patch for almost 20...