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Another excellent interview by Scot Simpson. Joan McParland deserves a medal for what she has achieved despite being so badly afflicted by ME.

Thank you for this compelling video. I was deeply affected by it.

In the previous poll I chose cognitive impairment and headaches. This time, with only one choice, I'm choosing pain. My constant tension headache is severe a lot of the time and I feel that the brain fog would go away if only the headache would. Can't trust feelings though.

My mother died far to late in the process of her motor neurone disease. After having watched her desperation to die at a time before voluntary assisted dying became legally available, I have no tolerance for opposition to it, however, only with strict limitations. It's up to each jurisdiction...

I haven't got the will to read it so I've probably missed the point but a quick glance provided this interesting revelation: "Simple walking is easy to learn and requires minimal professional guidance ..."

I wish I hadn't read this. It's yet another reminder of the capacity of human beings to justify mindless torture. It has spoilt my day.

Wow, that's a rather mind-blowing article. Why is this not public knowledge? (Rhetorical question) I love the Winston Churchill quote: "Men occasionally stumble over the truth, but most of them pick themselves up and hurry off as if nothing ever happened.’

I've skimmed through the links but didn't find a detailed description of the headaches. I would be interested to know if they mostly resemble migraines, cluster headaches, tension headaches or anything else listed here. https://headacheaustralia.org.au/types-of-headaches/. If they have a common...

I lived my first eight years in a city where winter smoke from chimneys sat thick in the air and wasn't blown away normally due to the geography. Then I moved to an apple growing area for the next eight years where DDT and other 1950s era pesticides were sprayed with abandon. I would have been...

There was an article in today's paper claiming that eating two medium bananas (or a cup of spinach or a large sweet potato:eek:) per day is more effective at lowering BP than reducing salt intake. Ugandans eat 660 pounds of bananas a year - each. That's over five medium bananas per day! Their...

All of this exactly for me too. It’s a great feeling of achievement to have ticked something off the list too. Where difficult but not urgent choices are concerned, I may not be able to make a decision immediately which is not the norm for me so I find it distressing and confusing. I have to...

A balanced report. Norman Swan is a bit dubious about the Qld survey for reasons he explains. He is open to ME/CFS being similar to long 'covvid' and hopes that covid research will help but he also says that the big difference is that the number of organs affected is greater in long covid...

They mention 130 shots in a 9 month period. That's 3.5 shots per week!

I can understand pepsin causing irritated eyes but why dry eyes I wonder.

A few years ago I was prescribed Lyrica but I don't recall exactly what for now. It was probably for peripheral neuropathy and probably to shut me up because my GP didn't believe I had it at the time. (That changed recently!) I didn't get past first base. For three days I took half a 25mg...

I haven't read anything about what science says about the specific risk to PwME. Maybe there isn't anything relating only to ME at all - ? My last sudden deterioration happened a very long time ago after a very bad cold (could have been the flu I suppose) and my goal since covid is to avoid...

I very much agree. Uprights are more expensive but they are frost free. Chest freezers aren't.

I have a house on a quarter acre block to maintain by myself and I loathe dealing with food so it's a no-brainer to go frozen for me. I do make the effort to cut sweet potato even although it hurts my arthritic hands a lot- sweet potato mash is to die for - and I use potatoes from my garden...

@Pibee - thank you very much for going to the trouble. I look forward to delving into it all. I was persuaded by a rheumatologist a couple of years ago to not undergo a lip biopsy because apparently my mouth wasn't dry enough which, I was told, would have made a diagnosis of SS most likely...

Not Ritalin but dexamphetamine. I copied most of this from a post from 2020 - A Trial of Solriamfetol in the Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Joel L Young, 2020 ... my experience with 5 mg of dexamphetamine (family member's ADD medication) taken quite often...