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here's the direct link to our session we start about half way through Almost at 1.2k views already which we are quite pleased with!

Another day another webinar! Today had a COVID emphasis for rehab professionals but we were able to present to over 400 participants about ME and the abnormal physiological response to activity. We've had some great feedback already and so hopefully a few more professionals now know more than...

Great work

Yes we are registered stakeholders in the guidance review process and so most definitely will be commenting. Still working through it to make sure we don't miss anything. Agree about the ambiguity- there's lots to be positive about in the draft but also some areas that could do with a bit of...

Today we presented our poster on the experience of physiotherapy of people with ME at the national physiotherapy conference (which is virtual this year due to covid) Not very many people visited our poster whilst we were there but it is a start - it was lunchtime and people may well have come...

Ooh thanks for the tag

Just flagging a podcast from Rachael Moses who is a pretty influential physio leader. She's interviewing physios with long covid and it is quite a long podcast (I've only got through the first half hour so far) but they have all acknowledged that their traditional approach of exercise isn't the...

We found out some positive news today that we wanted to share. The Health Education England e-learning resource for Covid recovery and rehabilitation https://www.e-lfh.org.uk/programmes/covid-19-recovery-and-rehabilitation/ has reference to ME and also provides a link to our website in the...

It's taken a while but we are hoping to put together our pacing podcast very soon. If you have any more comments about pacing please keep them coming as they are all really useful

You beat me to it - thank you for sharing here's the direct link to our blog page https://www.physiosforme.com/post/bacme-position-paper-our-statement

I love this!

:) thank you - we tried to get the message out there! A few others were name checking us as well so fingers crossed making some progress

As Autumn is back to school/education time, we are publishing a series of blogs on this subject https://www.physiosforme.com/post/back-to-school-considerations-for-young-people-with-me this is the first one which we hope might provide some ideas and advice for children/young people with ME...

Actually - just had an update - we offered them a call and they have yet to come back to us!

We have a call arranged with them next week!

first contact has been made!

thanks for tagging us in this - I hadn't seen it and definitely agree he seems to be someone to link up with

We did manage to get the CSP to add a section on PVFS https://www.csp.org.uk/public-patient/covid-19-road-recovery to this page (and to remove the quote in massive letters about the importance of exercise) but sadly the Norwegian crew seem to have ignored that bit!

Sorry to hear how much your daughter is struggling. We would always say that any change in symptoms should be checked out - most GPs are doing video consults now or have an option to ask for online advice (I would go for video if you can). I frequently book an appointment in my son's name and...

My thoughts entirely about the abstract - it isn't inspiring me to read it!