@Alvin There are other supplements also that can be useful - Boron and Collagen for example, and Magnesium. Not sure it will help ultimately with the density, especially as my weight bearing capabilities are limited (I do what I can, but am past doing anything heavy duty), but it will help I...
@MErmaid I have mixed feelings about osteoporosis treatments, best or otherwise, having looked into it over the past year. At the moment I have chosen not to have treatment, and since I fell downstairs onto my back in Sept and did not fracture, I am assuming that my bone quality is OK if not the...
Your story is interesting @Invisible Woman and I am sorry to hear that for you, the T3 did not help, or rather made things worse from the sound of it.
It was good that you found someone who was willing to give it a go though. In the UK, there seems to be very little understanding and any...
You are in the US @MErmaid ? It is interesting that you have had trouble there in finding decent people to help and with a degree of understanding, as it's certainly as bad, if not worse in the UK where I am. Luckily for me, I have a GP who though she doesn't bother to try to understand the...
@MErmaid
Although I believe that ME and hypothyroidism can go together, there are plenty of people on the thyroid forums that I visit who are diagnosed hypothyroid, but have all the hallmarks of ME as well without necessarily being diagnosed with that. I am not sure about the PEM or PENE...
I am really sorry @Wonko to hear that you did not get any recognition from the Tribunal of your issues re your PIP appeal.
While I have never applied for PIP (or DLA) for myself, I know a considerable amount about the system via applying for ESA for myself and also doing benefits advice work...
Apologies re my former apology for not being able to attend seems to have ended up in the middle of the message! Oh dear - modern technology fail again. :)
Yes, that was my story, although thankfully not as severe. I first went to my GP with fatigue, and thought it was related to my PMT which I had for years, but it had extended to 2 weeks+ instead of 1 week. Someone I knew had mentioned it could be underactive thyroid, so I asked if this GP would...
I got to see my records (rather than getting copies I spent half an hour or so making notes from them) and mine did go right back to childhood.
I discovered that at one point in my late teens, someone had fished out the wrong notes and muddled me up with my mother, (same initials and surname...
Today as I was reading this article and pondering the usual 'psychological' diagnosis, I was on FB and there was a post from a UK osteoporosis group I am in, and 2 members discussing how they had both had their back pain issues down to 'all in the mind'.
One of them had cervical spondylosis...
I get loose stools after using magnesium but it varies a lot depending on what else I am eating/taking. I usually take some last thing at night as that is useful for the a.m., and a bit more first thing in my multimineral. I do think it's best to get some via the skin though so I use the spray...
Thank you @Squeezy for your kind words. Yes, it was pretty horrible on the day, and I had to go back on Wed for a post op check which was OK as far as the op was concerned but they are still worried about the high pressure and increased the strength of the drops I have to put in.
I hope this...
Sorry not to have written on here recently and also not replied to your message @Squeezy - unfortunately had a medical emergency non ME related on Monday. My right eye which had an op for a detached retina last year, and same eye had cataract op (cataract comes very quickly post vitrectomy op)...
Interestingly, when I was diagnosed hypothyroid over 20 years ago, I never had my antibodies checked and in fact knew nothing of such things for many years. Earlier this year I asked my GP for one of those tests and it was positive. I do think that when I had my tests done so many years ago...
@Arnie Pye Yes, I have read the kind of story that you tell a number of times on thyroid forums. In fact if for the fact that I had not been diagnosed so many years before, it could easily have been me I think. I was diagnosed around 22 years ago when I was 43. The first GP I saw was my usual...
@Arnie Pye I am impressed by your level of knowledge on the whole thyroid subject. I have read stuff endlessly in books and online, but seem unable to retain the science part of it in order to repeat it usefully to anyone else (even though my Dr thinks I know more than she does ha ha). She...
Hi again @Squeezy. I will pm you with the details of where I got my T3 from and the Natural Progesterone cream. I got both of those bits of info via the Thyroid Patient Advocacy UK group, plus the fact that I got the NHS T3 originally via their useful list of Endos who at the time were OK about...
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