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They have SPSS licenses at least. With the fine data I extracted it from a Stata format using python (and I am not a python programmer) the instructions of how to do this are on stack exchange.

Before the information tribunal I remember tweeting an academic whose subject was ethics who was also on the QMUL council and he blocked me. But perhaps they know it won't go away as an issue and it will affect their reputations but I think this continued cover up will continue to do harm. I...

But i the Garbage Dept had a sub-department the called green bin collection and they closed then they wouldn't be able to avoid a FoI request because that part of the organisation no longer existed. They would be expected to provide the information having someone from a different dept now going...

I think they have got away with drawing a perimeter around the PACE group and treating them as a separate entity. It would be interesting to know the process by which they went about forming their argument. For example, did they just ask White who said no one could interpret it or did they ask...

It was a stolen tape recorder for PACE there was a previous incident of a stolen computer at Kings which appeared after a statistician challenged stats in Wessely's paper. My interpretation was not that they had lost the data but that they couldn't interpret the bits. From my perspective...

I think the ICO may be setting a very dangerous precedent in that QMUL are the institution responsible but they are allowing them to localise the problem to a given team and claim that team didn't exist. QMUL clearly have employees with the skills to access the files and do the work. Can you...

Kings and Oxford will also have the data. I don't think Larun would be in a position to give data since it would be given to her under a confidentiality agreement. Of course if they believed the data contained personal information they would have breached the data protection act by giving it to...

Remember they are selling services to the NHS based on claims made in the pace trial. That's what one of the latest MUS slide sets suggested.

They seem desperate to cover up even at the risk of saying they can't manage trial data properly. If the data was not adequately documented then it suggests they did not have adequate systems to ensure that the results they quote are correct. As well as White still being involved with new...

Also Dept of Business which I think gives budget to the research councils and dept of education which is responsible for universities. Questions should be asked about lack of governance and QMUL covering up.

I think they are a small charity set up by a couple of teenagers to help support other kids and teenagers with ME.

Yes I think so. I think most were just on the sf36. But the CFQ is such a terrible questionnaire I think any trial using it shouldn't be taken seriously.

I think it was 13% would have met one of the criteria at entry (specifically the sf36 or CFQ ones). Clearly no one met the CGI ones as this is a 'how much better do you feel after the trial' or if you didn't tell them 'how much better did the assessor think you felt after the trial' The Oxford...

I think we need to remember that the head of governance for the MRC went out of her way to back PACE. She dismissed complaints about outcome switching and she appeared in the information tribunal to stop data being released. The MRC and in particular their head of governance have been seen to be...

Yes that saves me from looking. I will have a play on my test system over the next few days.

I don't think that is possible. I think the best I could do is set up a group and then send alerts through the admin console (so it would need to be me sending them). Xenforo doesn't allow groups to be tagged as far as I can tell. I will try to look for an addon that may allow it.

Yes this is a new forum we started in October.

I think you meant to say do not like state intervention in parenting The left (SNP) has been putting an official state "Named Person" in for every child which for children with ME is scary https://www.theguardian.com/society/2016/jul/28/scotland-child-named-person-ruled-unlawful-supreme-court

Its very concerning but I think some of the attitudes are already institutionalized. A friend had fatigue in the early 90s and kept being dismissed by doctors it turned out to be something serious, life threatening and acute which one GP eventually picked up on and finally got treated. I think...

A big concern with these approaches is what happens if people are misdiagnosed or have other acute issues that need to be dealt with - telling people to ignore symptoms mean they get ignored and not investigated.