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Universities may be trying to run like companies but they are very different (at least from US companies). One big think is around lines of management which are clear in companies with people being judged by profit. Its common for senior managers in companies to get sacked/move on when they...

I don't think people with ME have a very loud voice in that is it hard to be heard in the media. Although there have been a limited number of good stories over the last few years, If, however, as Crawley asserts that people with ME don't have a voice the answer is not to speak for them without...

https://app.box.com/s/fjgmknca41hp5twmtzuwt2g9do1dksb0

I took it as a lack of imagination with a need to do a trial to further her career and that she couldn't think of anything better. But motives are always hard. Perhaps she was taken in by patents interest and anecdotes of success. But the process of asking the ethical questions and the design of...

Its an interesting situation because does Bristol University have the right to label it as such given the DPA and FoI. The "it is my understanding" part perhaps suggests that they lawyers are not fully aware and hence it may become hard to argue it is done under attorney client privileged?

The lawyers duty is to Bristol University and not to EC. Surely they have a duty to do the right thing for Bristol and not necessarily for EC. Hence if she is not telling the lawyers the full story then they have a duty to make sure they ask so that they protect the Universities legal position...

I think Valarie has been helping David. You can mix FoI and Subject access requests. https://ico.org.uk/for-organisations/guide-to-freedom-of-information/refusing-a-request/

I wondered if she knew exactly what she was saying and it reflects her unhappiness at the situation. Why else say no we didn't send a cease and desist letter but tried to apply pressure through back channels. She is the director of legal services at Bristol so I doubt she is naive.

British universities are getting a very bad reputation for their failure to deal with complaints and for governance in general. There have been a number of issues around universities failing to deal with sexual harassment allegations against staff. The latest issue to hit university governance...

I assume that the Berkeley don't seem to have told David means that the quiet word didn't work. It is a very british establishment thing to do. But it does say that Bristol University is backing Crawely at a senior level and I suspect it also means they are doing so without any level of...

That's trying to look at the relationship between variables. I was wondering if anyone had taken the question answers as a vector and looked for clusters between different patients. Depending on the distance metric used that can show interesting things. But also worth removing noise like...

Derya Unutmaz suggests it was a good event and a transcript will be posted at https://www.nih.gov/mecfs/events

Has anyone done a cluster analysis on the different answers?

Especially for a child.

If they would respond then we could ask for clarification which is generally the best tactic when people are vague. But it always worries me when scientists are vague especially when their arguments seem well rehearsed. Science should require exact statements and they should know that and have...

They talk about subjective vs mortality. I would have thought trials like PACE and Smile were particularly bad for bias on subjective measures because interventions try to change perception of the illness. But if that is not included as a variable in any model then such an effect would be...

He was an author on the paper where they didn't seem to have ethical approval but claimed it was a service evaluation.

I had thought that sickness behavior theories were concerned with signaling between cells to conserve energy to fight bugs rather than anything psychological. I can of course see that some will try to make them brain based and hence suggest they may be amenable to therapy, But it seems to me...

I always thought "wares e to" was where is he or where is it. But that's bristol not Cornwall.

I think it is interesting that they don't broker partnerships. EPSRC has run a sandbox process to do this in the past where they considered areas particularly important. Perhaps when the research councils are merged into one organisation there may be more innovation in the way research is...