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From Facebook: In mid December last year, #MEActionUK emailed NHS England regarding the web page on ME/CFS on the NHS UK website (see link below). Although the page was recently updated - on 28th May 2024 - it currently contains misleading information which does not align with the NICE...

From Facebook Open Medicine Foundation (OMF) is committed to bridging research and clinical practice, empowering clinicians and bringing renewed hope to millions of patients worldwide. Through its collaboration with VuMedi, a global education platform for healthcare professionals, OMF has...

Mark Vink: Thanks @MEAssociation for paying the article processing charges #MEcfs #MyalgicEncephalomyelitis #SevereME

ME Research UK: The 2025 IACFS/ME Virtual Research and Clinical Conference took place online between the 22-25th October 2025. Over the course of the conference several key areas emerged relating to both ME/CFS, and to long COVID, these were: - The importance of validity, reliability and...

I’m a big fan of Mike VanElzakker now but in his first paper, he criticises advocates critical of CBT and GET in a very frustrating way over a number of pages as I recall. Chronic fatigue syndrome from vagus nerve infection: a psychoneuroimmunological hypothesis Michael B VanElzakker. Med...

New blogpost from Emily: https://emilymendenhall.substack.com/p/bluesky-blowup Edited to add: oops, I see it was posted before.

https://wwwnc.cdc.gov/eid/article/32/13/24-1793_article Volume 32, Supplement—February 2026 SUPPLEMENT ISSUE Supplement Postinfectious Syndromes and Long-Term Sequelae after Shanna Miko, Pallavi A. Kache, Erin Imada, Amy L. Freeland, and Julia C. Haston Author affiliation: Centers for...

https://www.mdpi.com/1422-0067/27/2/826 Hypermethylation of OPRM1: Deregulation of the Endogenous Opioid Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia Arne Wyns1,2, Jolien Hendrix1,2,3, Jente Van Campenhout1, Yanthe Buntinx1, Huan-Yu Xiong1,3, Elke De Bruyne4...

BACME AGM 2026, Janauary 26, 18:00 BST Go to, https://bacme.info/event/2026-agm/ Doesn’t give much info.

From Facebook: New self-advocacy resource now available: Impact Statement Template. This new resource, developed by our Adults Advocacy Service in collaboration with their steering group, aims to support people with ME to communicate how ME impacts them and what adjustments would best support...

Bernard Shiu is quoted (and the new network mentioned) in this frustrating article in the US Daily Mail on an Australian woman: “Doctors say I'm one of a handful of people to beat chronic fatigue syndrome. My 20s were overwhelming exhaustion - now I'm living proof you CAN recover”...

https://www.ucc.ie/en/apc/news/apc-news/apc-research-discovers-novel-role-for-microbial-metabolism-in-covid-19-severity-and-long-covid.html Updated 20 June 2025 APC research discovers novel role for microbial metabolism in COVID-19 severity and long COVID 27 Nov 2024 New research shows...

About IEFM The Swiss Institute for Environmental and Functional Medicine (IEFM) is dedicated to bridging the gap between holistic medicine and scientific research. Our commitment is rooted in the belief that combining these two fields is essential for advancing healthcare and fostering a...

There are lots of Twitter posts on this, some of which have been collated under this trend post https://x.com/i/trending/2011534813120118798 Long COVID Raises Alzheimer's-Linked Brain Marker in New Study Last updated 10 hours ago Researchers compared blood samples from 227 people with...

English-language version: https://anilvanderzee.com/are-dutch-psychologists-distancing-themselves-from-graded-activity-in-me-cfs/ === Automated translation from Anil van der Zee’s Facebook page Clinical psychologists Klaas Huijbregts and Luuk Stroink published in the magazine Behavioral Therapy...

https://www.nysenate.gov/legislation/bills/2025/J1383 2025-J1383 Commemorating the 34th Anniversary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day in the State of New York Sponsored By Roxanne J. Persaud (D) 19th Senate District text 2025-J1383 Senate Resolution No...

Press release: https://www.jcu.edu.au/news/releases/2026/january/new-insight-on-chronic-fatigue-treatment New insight on chronic fatigue treatment Featured News New insight on chronic fatigue treatment A new study has found some types of Cognitive Behavioural Therapy (CBT) can help those...

AQEM on Facebook: Replays of the Canadian Collaborative Conference on ME #ICanCME2025 are available on YouTube. This conference, organized by the ICanCME Research Network, took place from November 4th to 6th 2025. Under the theme “Nothing About Us Without Us,” this virtual conference brought...

Action for ME: Practice nurses are often the first healthcare professional a person with ME will speak to, and the way that interaction unfolds can make a lasting difference. Our article by Action for ME CEO Sonya Chowdhury, published in Practice Nursing, highlights the crucial role that...