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https://mcs-aware.org/articles/a-historical-overview-of-early-immune-research-in-mcs/ A historical overview of early immune research in MCS A historical overview of early immune research in MCS Note that this is summary that we’ve gathered from being part of an MCS taskforce – (not intended...

https://mcs-aware.org/articles/rights-of-people-living-with-mcs-defended-by-press/ "The ‘La Presse’ has published a response from The Environmental Health Association of Canada, defending fragrance-free environments and the rights of people living with Multiple Chemical Sensitivity. This is...

(Adjusted from a post I saw elsewhere) Yesterday, the Dutch Association against Quackery published a report of two court cases involving CFS doctor Kenny De Meirleir. The google-translation from Dutch to English of the report is found here, Quackery costs are not tax deductible...

Marcia: life with severe ME is like screaming into the void https://www.thecanary.co/opinion/2025/12/19/me-void/

The National ME/FM Action Network have just highlighted this to those on their email announcement list.

Study Advertisement https://mcusercontent.com/4c38d0bc605415bbd022ed14a/files/8dc925e0-0267-89c8-4a99-e30756dd381e/Trent_University_ME_Study_Advertisement.pdf

https://mcusercontent.com/4c38d0bc605415bbd022ed14a/files/6c72ea35-0b4c-fb0b-4714-b02c51e3397d/Trent_University_ME_Study_Email_Invitation.pdf Subject: Research Opportunity for Canadian Youth and Young Adults with ME/CFS December 18, 2025 Hello! My name is Brian Abernethy and I am a PhD...

Joanne Hunt. Mapping the government of disability in myalgic encephalomyelitis/chronic fatigue syndrome: A critical feminist account. International Journal of Disability and Social Justice. 2025. Vol. 5(3):332-356. DOI: 10.13169/intljofdissocjus.5.3.0004...

Klein, S. (Dec. 2, 2025). statesofmind. How People With Chronic Fatigue Are Gaslit by Healthcare Systems. https://statesofmind.com/articles/chronic-fatigue-gaslit-by-healthcare/ Health journalist Sarah Klein tells the story of Patrick Ussher, whose extreme thirst and fatigue were dismissed as...

Global Lyme Alliance on Facebook: On December 15, the U.S. Department of Health and Human Services convened a national roundtable on Lyme disease, bringing together patients, clinicians, researchers, and lawmakers for a public discussion on the realities of living with an often invisible...

HHS Hosts Lyme Disease Roundtable with New Initiatives Announced Last updated Dec 18 The U.S. Department of Health and Human Services gathered patients, doctors, researchers, and lawmakers in Washington, D.C., to tackle Lyme diagnostics and treatment gaps. Key announcements included renewing...

UK Long Covid trend set of posts NHS Nurse Marks One Year Since Long COVID Job Loss Last updated Dec 18 The former learning disability nurse from Bradford shared how the condition ended his career and reshaped his life, leaving him utterly exhausted just by being alive. Green Party leader...

From: International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) <iacfsmeorg.gmail.com@growthzonemail.com> Subject: 2025 IACFS/ME Conference: Free Reports Hello, IACFS/ME Members and Supporters, Every conference, we offer complimentary registration to some...

Todd Davenport on LinkedIn https://www.linkedin.com/posts/todd-davenport-2795ba10_explore-scientific-technical-and-medical-activity-7407724109154938880-gLW1 We need better endpoints and more careful research design to succeed in Long COVID research. Our new article offers 5 key recommendations...

Letícia Soares on LinkedIn https://www.linkedin.com/posts/leti-soares_happy-to-share-our-new-paper-discussing-outcomes-activity-7407740325810814977-V6BA Happy to share our new paper discussing outcomes for Long COVID clinical trials, with special considerations on post-exertional malaise...

https://www.sciencedirect.com/science/article/pii/S235239642500533X Recommended long COVID outcome measures and their implications for clinical trial design, with a focus on post-exertional malaise Personal View Letícia Soares, Hannah Davis, Ezra Spier, Tiffany Walker, Todd Davenport, David...

This uses the Georgia cohort. This study had a prevalence of 2.54% compared to an earlier study using similar methodology of 0.235%. This huge difference was largely due to the use of the empiric criteria (Reeves et al 2005), a very odd way to define CFS. I have little confidence in the...

From Facebook New video available now! #MEAction’s Shalida Dobbins interviews author Brian Buckbee about his book, We Should All Be Birds. https://ow.ly/rF0750XK2Jr The discussion ranges from what is the process for writing a book with ME, what is it like to share your story with the world...

https://www.eurekalert.org/news-releases/1110090 News Release 16-Dec-2025 Occupational factors strongly influence long-COVID risk A large Catalan cohort study shows that healthcare, social care, education, retail, and transport workers are at higher risk for Long-COVID Peer-Reviewed...

https://www.eurekalert.org/news-releases/1110258 News Release 16-Dec-2025 New research identifies linked energy, immune and vascular changes in ME/CFS Peer-Reviewed Publication Macquarie University FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail image: Heng et al. apply a multi-omics...