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Do you know what he prescribed?

It does seem to fall into their line of thinking. I think some people are very attracted to the mind over body (and hence matter?) message behind the BPS model. It seems to be a kind of moral belief (I'm a good person so not ill or my mind is strong so I'm not ill).

I think I had got confused there. There is a mention of Gemma Fox on the wiki page as a sister.

is that that the same sister that is involved in sense about science?

I think there is a worrying tone of someone who knows they are right in the face of all evidence and arguments and who intends to continue to preach their rightness to the world. I noticed another phrase used 'there but for the grace of RCP' that is replacing god with the RCP and I suspect in...

It reads as an early attempt at post truth politics. Basically saying that they need to create a framework for thinking that people will believe. Then dismiss everything that doesn't fit this 'framework' as wrong. But the framework needs to be attractive to pull in the punters. There is no...

The frustration is that it doesn't let us quote them which I suspect is why they won't publish numbers and why the I suspect they also dropped it as a secondary outcome. From the published protocol list of secondary outcomes. Its not mentioned as a secondary outcome in the stats plan and so...

I thought he ran the Cornwall service. I suspect @Russell Fleming can comment.

So none of them actually get research funding in that it goes to the institutions they work for. But they get career advancement, pay rises and possible pay (or someone to do their lecturing duties) from the research funding. I do wonder if the institutions backing these trials should also...

Yes I think fitbits are fashion items these days and record a lot of data so could be very useful for a trial. I believe that the data is not 'medical quality' but that is for diagnostic purposes (e.g. heart rate monitoring etc) rather than for long term trends.

I think both White and Wearden got their chairs after PACE and FINE and I assume they formed a big part of the case. But career progression doesn't seem to be a CoI. I wonder if the pressure to run a big trial and show positive results is a CoI for academics looking for promotions. Has anyone...

No. As far as I remember there are no objective measures being recorded. Primary outcomes are CFQ and Sf36-physical function (I think). There may be some form of school attendance measure (can't remember). That's one of the big objections.

If the PACE PIs didn't think it was worth recording in the minutes then they shouldn't be using it as an excuse in public. It would be interesting to know what was recollected and also whether any questions were asked when that statement was first made. Part if the issue is that when PACE...

But that doesn't tell they what the representative agreed to. To me the point is that the PACE team are making claims and blaming people for things that are not contained in their minutes. It wouldn't surprise me if the AfME representative had questioned the need for all the form filling in...

Could there be a selection effect in these trials where they are looking for people with higher levels of auto-antibodies hence finding a smaller subset that wouldn't be found anywhere near as often at random?

Personally I would avoid using torrent etc. I've always worried that it is a route for hackers to spread malware (although no evidence of this!). I believe youtube are quite quick to take down copyrighted material when someone contacted by someone but I suspect they only police things for the...

Didn't the TMG minutes stress the importance of this?

It looks like a feasibility study to see if they could do a trial with 26 patients in one arm and 24 in the other. So may be too underpowered to show a significant difference. Also subjective outcomes (possibly judged by a doctor with a 45 minute interview).

The PACE PIs always try to deflect or blame others. So with the protocol changes they said they were approved by the TSC which is independent and with the actigraphy they were deflecting to AfME and for the bad results and bad methodology they are now trying to deflect to Cochrane saying they...

I think this is where they try to blame action for ME (the patient charity).