Search results

@wigglethemouse Wiggle, posted an awesome post on the old mother ship. I'm not sure what is allowed here so I will post a link and part of the post and see what fur flies. Link...

The women's study is funded and the men's study is over half way there. She is waiting for IRB approval to begin both studies.

I wish they would live stream it like others have done recently. I've ordered the DVDs in the past but have had problems playing them.

Thanks Denise. I copied and pasted but apparently the agenda part didn't copy over. I just revised it to now include it!

MARK YOUR CALENDARS March 11, 2019 3:00 pm - 4:00 pm Eastern Time CDC ME/CFS Stakeholder Engagement and Communication (SEC) Conference Call participants please call in using the following information: Call number: 1-888-603-8916 Participant Code: 7907006 Meeting Agenda 3:00pm...

Mark Davis at Stanford has found T-cell activation. What do you make of this then?

@Jaybee00 Genentech has an assistance program that a number of patients have used to receive Valcyte. As long as you make under I believe $100,000 a year and have a doctor willing to prescribe it.

Thanks for posting this. I've been on Valcyte for a number of years with a small boost in energy in the beginning. I do have that wired feeling in the evening and trouble sleeping also. I think I'll try taking a break and see if those symptoms improve.

@dave30th Stoke up that fund raising machine as it appears your just getting started!

Keto Article from USCF: https://www.ucsf.edu/news/2018/08/411526/ketogenic-diet-gains-popularity-scientists-research-what-we-do-and-dont-know "Swanson, a professor of neurology who has researched the impacts of ketogenic diets on inflammation in the brain, got curious about the ketogenic diet...

Posted on FB:National Centre for Neuroimmunology and Emerging Diseases - NCNED A turning point for CFS/ME Research NCNED have announced that a pivotal research publication has been accepted: ‘Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from...

"Researchers estimate that birds and mammals harbor anywhere from 631,000 to 827,000 unknown viruses that could potentially leap into humans."

I liked your post because I live in the San Francisco Bay Area and rent and am about to be forced out of the area due to high costs. I just received a 20% rent increase. So I would never desire a pandemic but I would sure like to see something transpire to bring some sense to an out of control...

https://www.telegraph.co.uk/news/0/deadly-chinese-poultry-flu-could-spark-worldwide-pandemic/ Excerpts of the article: "A new strain of bird flu which kills 38 per cent of those it infects has been identified by the deputy chief medical officer for England as the most likely candidate to spark...

https://www.washingtonpost.com/national/health-science/hiv-infected-people-are-living-for-years-but-age-related-diseases-set-in-early/2018/04/13/ee26f74e-3120-11e8-8abc-22a366b72f2d_story.html?utm_term=.bfe3e5279ad8 Excerpts: “Most people assume that the medicines have worked and that...

Hi Webdog, Your doing some awesome work on our behalf and I just want to express my appreciation for what your doing. For years I had Kaiser and found they really stick to there guns on the CBT and GET. I had a Primary Care doc and a Rheumatologist who truly believed I was sick and did all they...

http://www.meresearch.org.uk/our-studies/rituximab-biomarker-study-update/ "Last year, we reported on a newly funded study aimed at developing a biomarker to help predict patients who will respond to treatment with rituximab. Unfortunately, this study will not now be going ahead." "Although...

https://www.sfgate.com/bayarea/article/Chemotherapy-free-cancer-vaccine-moves-from-12777406.php A few excerpts from the article: "A recent Stanford cancer study that cured 97 percent of mice from tumors has now moved on to soliciting human volunteers for a new cutting-edge medical trial."...

@Binkie4 If you have any legitimate questions you can email Dr. Nath at: avindra.nath@nih.gov I initially had questions that he graciously answered and in so doing availed any concerns I had about the study and convinced me of his dedication to helping find us some answers. Were fortunate to...

Unrest film screening and panel discussion by UC Berkeley School of Public Health https://www.eventbrite.com/e/unrest-film-screening-and-panel-discussion-tickets-42371589565 Unrest film screening and panel discussion ME/CFS: Spotlighting a Neglected Disease Myalgic encephalomyelitis/chronic...