Search results

  1. Adrian

    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    They also published an article from White after the initial reanalysis of the recovery results and ignored complaints that it was inaccurate.
  2. Adrian

    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    Not only the recovery claims but the claims in the manuals (which they seem to have removed from public view) where CBT and GET claim to be curative where as APT and SMC claim to help with symptoms and allow the body time to recover. This difference in expectation setting is one of the things...
  3. Adrian

    Report harassment or risk losing funding, says top UK science funder

    Maybe they will eventually get concerned about researchers general ethical behaviour. I would be interesting if research funders sanctioned Bristol University because they had failed to deal with researchers who didn't get ethical approval
  4. Adrian

    Breast cancer screening programme 'does more harm than good'

    @TiredSam I can set what media gets included as a media link and what doesn't. I think most things are selected on the media pack but I'm quite happy to change that. I only installed it to do twitter (and it doesn't do that very well).
  5. Adrian

    €100-billion budget proposed for Europe’s next big research programme

    From what I remember of the previous framework projects they are big consortiums that need to be put together and they need the right members to get approval. I think Framework 4 needed southern European partners and FW5 needed east European partners (the new members). A consortium will include...
  6. Adrian

    Did the David Nutt SAFFE Xyrem drug sleep study ever publish?

    I don't remember it being published anywhere and I've wondered about that a few times.
  7. Adrian

    A general thread on the PACE trial!

    I suspect that is their attitude but in itself the attitude there is 'science' that tells truths and 'anti-science' that criticizes the truths is very unscientific. Science works by debate and analysis, does an experiment support a hypothesis, is the methodology strong enough to support...
  8. Adrian

    A series of PACE funding FoI requests

    I think there is some discussion of this in the TMG or the TSC minutes. If I remember they seem to refer to paying some NHS fee for patients that I assume covers overheads for the trial and the additional medical support costs. But I didn't understand it but it seemed to refer to a standard...
  9. Adrian

    Michael Sharpe skewered by @JohntheJack on Twitter

    So @Carolyn Wilshire wrote a paper reviewing the evidence in a more general space of psychogenic explanations for physical symptoms. People here are very concerned about MUS (medically unexplained symptoms) which is becoming a wrapper for such psychiatric claims on other diseases. But with MUS...
  10. Adrian

    Me-ICC exclusions

    I think they are saying where there are things with potential symptom overlap then they are excluding. I don't think that is good they should at least consider the order of symptoms/different illnesses etc. T The IoM guidelines were much more careful not to exclude for the sake of it and I seem...
  11. Adrian

    The biopsychosocial model

    Some are. Many are concerned about careers and end up following the fashion in research, I suspect in part as that is where the money is. Some who aren't very good at science seem to take up positions in academic or research management and have way too much influence. Many if not most go into...
  12. Adrian

    Michael Sharpe skewered by @JohntheJack on Twitter

    There was a 2.5 year follow up for PACE which Sharpe spun as supporting PACE (because improvements remained) but the other arms caught up. Looking at the TSC/TMG minutes a major part of the follow up should have been economic data but this was never published. In addition there were plans that...
  13. Adrian

    Online ME Quiz content help

    (Edited by moderator to reduce confusion that might arise resulting from deletion of other posts.) As a general piece of advice if you are concerned about a link it can be worth running it through virus total first before going there https://www.virustotal.com/#/home/url They run the link...
  14. Adrian

    Online ME Quiz content help

    Looks like a false alarm that they have corrected. https://reports.adguard.com/en/me-quiz.epizy.com/report.html Moderator note: A number of posts have been deleted from this thread related to the safety of the linked website. The website has been found by forum admin to not present a phishing...
  15. Adrian

    (Not a recommendation) CFS or where is my stocking?

    I think its more due to their beliefs and failures of logical reasoning in terms of their inference 'don't understand => psychosomatic' . Which is precisely the inference that seems to be the basis of this article. But I don't think they actually provide any argument to backup their claim just...
  16. Adrian

    (Not a recommendation) CFS or where is my stocking?

    I would have thought that epidemiology should be really interesting. But maybe I've misunderstood what it is. Now we have large amounts of data and ways to process and learn patterns then looking at disease spread patterns should be a reinvigorated. I think google can predict an outbreak of the...
  17. Adrian

    Michael Sharpe skewered by @JohntheJack on Twitter

    I've been thinking about some of Sharpe's comments and they only seem to make sense if he really believes that ME is caused by disfunctional beliefs thus that is how he defines it. But even if this were the case his trial design is only robust iff a change in these beliefs is the only factor...
  18. Adrian

    (Not very interesting) Tracey Brown/SAS 2015 submission to Independent Commission on Freedom of Information

    I remember thinking at the time that this was coordinated with White and his submission
  19. Adrian

    Michael Sharpe skewered by @JohntheJack on Twitter

    But only if they have the ability to influence the trial. Giving money to a cause is not a CoI. A cause taking money from someone with alternative interests could be. My point about QMUL is that as an organisation (and legal entity) they were highly involved in the trial (as primary sponsors...
  20. Adrian

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    Effective communication often involves understanding the audience. So we need different styles to interact/influence/catch the attention of different groups. But we also need to understand that this is not just about communication but its an adversarial situation where there are groups with...
Back
Top Bottom