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  1. Adrian

    Michael Sharpe skewered by @JohntheJack on Twitter

    I assume there is also a concept of past reward implying future reward. So if I have done work for insurance companies in the past then I am likely to do so in the future assuming good status follows from good results. The thing I am wondering about whether institutions should declare CoIs...
  2. Adrian

    AFME decide Geneva is where their #millionsmissing contribution should be

    I think you are getting confused with people giving medical advice to insurance companies and people with actual management positions. No company in their right mind would appoint Sharpe as a CEO as he has no management experience and if they did their share price would plummet (the markets care...
  3. Adrian

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    I think the PACE people had tried to push the message that the reanalysis didn't show anything different from their published results (I guess they would claim a statistical significance) so it may be pandering to that view.
  4. Adrian

    PACE trial TSC and TMG minutes released

    I think this exposes other issues with SF36 as a scale. Really to be a scale there should be an expected order and linearity of response but if people find (and judge severity) different activities have different difficulties then its not really ever going to be a scale. There is no expected...
  5. Adrian

    PACE trial TSC and TMG minutes released

    I wasn't intending that rather to echo what I thought a therapist may say to convince you that your levels of activity are normal and hence change your scores. If we know we our own judgement on these things are contextual and difficult then we cannot trust subjective assessments
  6. Adrian

    Very little happening!!

    I think you are right in terms of publications. But I think there is good research going on and it does take time to do it and publish.
  7. Adrian

    PACE trial TSC and TMG minutes released

    But Graham as you get older everyone has problems with walking what your experiencing is just normal - don't you want to get better? If I got a CBT therapist to repeat this to you in sessions over a year would you change your view of what is difficult and change the box you tick? If you did I...
  8. Adrian

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    Sometimes people with absolute certainty do very well. Until they run across people who know they are wrong or their certainty contradicts their usefulness.
  9. Adrian

    What is Action for ME's current (March 2018) position on the PACE trial?

    I assume it becomes an issue for many patient charities with magazines that many of the companies who wish to advertise will be selling alternative medicine, unproven supplements etc. One of the reasons for not taking advertising here. It could get worse with websites where advertising is...
  10. Adrian

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    It does seem to fall into their line of thinking. I think some people are very attracted to the mind over body (and hence matter?) message behind the BPS model. It seems to be a kind of moral belief (I'm a good person so not ill or my mind is strong so I'm not ill).
  11. Adrian

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    I think I had got confused there. There is a mention of Gemma Fox on the wiki page as a sister.
  12. Adrian

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    is that that the same sister that is involved in sense about science?
  13. Adrian

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    I think there is a worrying tone of someone who knows they are right in the face of all evidence and arguments and who intends to continue to preach their rightness to the world. I noticed another phrase used 'there but for the grace of RCP' that is replacing god with the RCP and I suspect in...
  14. Adrian

    Article by Fiona Fox (SMC) for the Revolutionary Communist Party (c. 1996)

    It reads as an early attempt at post truth politics. Basically saying that they need to create a framework for thinking that people will believe. Then dismiss everything that doesn't fit this 'framework' as wrong. But the framework needs to be attractive to pull in the punters. There is no...
  15. Adrian

    PACE trial TSC and TMG minutes released

    The frustration is that it doesn't let us quote them which I suspect is why they won't publish numbers and why the I suspect they also dropped it as a secondary outcome. From the published protocol list of secondary outcomes. Its not mentioned as a secondary outcome in the stats plan and so...
  16. Adrian

    Action for ME's administration and how that affects its views about treatment

    I thought he ran the Cornwall service. I suspect @Russell Fleming can comment.
  17. Adrian

    Statements on conflict of interest of PACE trial TSC

    So none of them actually get research funding in that it goes to the institutions they work for. But they get career advancement, pay rises and possible pay (or someone to do their lecturing duties) from the research funding. I do wonder if the institutions backing these trials should also...
  18. Adrian

    PACE trial TSC and TMG minutes released

    Yes I think fitbits are fashion items these days and record a lot of data so could be very useful for a trial. I believe that the data is not 'medical quality' but that is for diagnostic purposes (e.g. heart rate monitoring etc) rather than for long term trends.
  19. Adrian

    Statements on conflict of interest of PACE trial TSC

    I think both White and Wearden got their chairs after PACE and FINE and I assume they formed a big part of the case. But career progression doesn't seem to be a CoI. I wonder if the pressure to run a big trial and show positive results is a CoI for academics looking for promotions. Has anyone...
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