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Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and presuming it can be accessed outside the US) Title: Online Program Why Can't This Child Get to Class? Learn how ME/CFS keeps youth from attending...

And have you seen this... https://www.systemreview.health.govt.nz/interim-report

Have you seen the draft strategy for Disability? You may be aware that the Ministry of Health is touring thru the country in Sep and Oct to hold 'Disability Community Conversations' sessions. The committee of the Canterbury support group registered for the Christchurch sessions being held...

Thanks for providing such a great response @Daisybell. We should share it widely for others to pull out when needed :)

ANZMES* are involved in some GP education this weekend... :) *ANZMES (Associated NZ ME Society), is our national support and advisory charity for ME. Edited to add: As shared on their facebook page.

Agreed

Thanks for highlighting. Apologies, I normally remember to check the link suffix! I have edited now.

M.E. Awareness NZ has some other news to share... Dr Richard Medlicott, currently the Medical Director of the Royal NZ College of GP’s, is partnering with M.E. Awareness NZ to raise funds for evidence-based M.E. education opportunities for GP’s. Richard has extended family members with ME, and...

Actions for our website team: Someone has asked that we have a way to print out the What is ME? page nicely.

Just including feedback /usability critique here in this thread, from the website announcement in the NZ news thread... https://s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-14#post-192790 Actions for our website team: 1. Provide a hyperlinked Contents list on the...

Thanks for the question /starting the convo here :). This is what we have included in the What is ME? page... I will check with the team on the source for those stats, but the references we have included at the bottom of that page are; Dimmock ME, Mirin AA, Jason LA (2016) Estimating the...

Thank you! We had talked about adding hyperlinks to the Contents List and a bit or a reorg - just hadn't got to it. Thanks for reinforcing the need for it. :) I see your point about the spacing needed between the lines. We greatly appreciate you taking the time to help us improve usability...

New thread here :) https://www.s4me.info/threads/m-e-awareness-nz-launches-website.10826/

Our social media post... :) We really would welcome any feedback at any time! n.b. The website might look a little familiar with those that visited the 20000Missing.nz site that was used around May 2019 Awareness week in NZ (and set up by two parents of young adults with ME based in...

Hmmm... What forum would you recommend? Advocacy Projects and Campaigns?

We are excited to announce the launch of our new www.m.e.awareness.nz website. ____________________________ We have high hopes that this site will help us to make M.E. more visible in NZ, become a reliable source of information for health professionals, support our advocacy work and bring...

I thought you might be interested in this new entry in the Survey... http://www.washingtongroup-disability.com/washington-group-question-sets/short-set-of-disability-questions/ This question set would capture people with ME, I would think?

Just fyi I plan to make a submission today, probably go with something like... given the small sample size, but will also raise in a letter that we are drafting to the Minister of Health. Who knows. Might get some support from that angle. Thanks everyone for your input. My apologies for the...

If you are a member of ANZMES you may have recently received the Winter 2019 Issue (136) of 'Meeting Place', their quarterly journal. I just want to encourage people to respond to the request for input into the ANZMES strategic plan and to give thought to whether you want to be nominated for...

So just wondering... what size survey do we believe would be needed given the NZ population of 4,794,436?