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  1. Sly Saint

    Spain plans to ban alternative medicine in health centres

    Article in Guardian: full article here: https://www.theguardian.com/world/2018/nov/14/spain-plans-ban-alternative-medicine-health-centres
  2. Sly Saint

    New sleeping sickness drug approved

    from Wikipedia " Fexinidazole is an antiprotozoal agent.[1] It has activity against Trypanosoma cruzi, Tritrichomonas foetus, Trichomonas vaginalis, Entamoeba histolytica,[1] Trypanosoma brucei,[2] and Leishmania donovani.[3] The biologically relevant active metabolites in vivo are the sulfoxide...
  3. Sly Saint

    James Coyne 15 11 2018 What the VGCT congress did not hear - presentation in Netherlands

    The Netherlands – VGCt. Vereniging voor Gedragstherapie en Cognitieve Therapieën. Dutch Association for Behavioural and Cognitive Therapies, DABCT. James Coyne was invited to be on the Nov VGCt panel, but they then withdrew the offer.... the sound is not very good. eta: mentions the...
  4. Sly Saint

    United Kingdom: The Royal Society of Medicine

    think this might be the video:
  5. Sly Saint

    Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP

    Important point made in 2nd reply by Lord O'S see my post here: https://www.s4me.info/posts/122424/
  6. Sly Saint

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    In a reply to Bridget Phillipson MP (re letter from Malcolm Hooper) Lord O’Shaughnessy confirms that the Dept of Health & Social Care does accept the WHO classification of ME/CFS: “I can confirm that we accept the World Health Organization’s classification of CFS/ME as a neurological condition...
  7. Sly Saint

    The Canary: Esther McVey and her department are now totally out of control

    find ways to deport people who are sick/unemployed?
  8. Sly Saint

    Brain glial activation in fibromyalgia – A multi-site positron emission tomography investigation (2018) Albrecht et al.

    Brain Inflammation Imaged for the First Time in Fibromyalgia https://www.dailykos.com/stories/2018/11/15/1813035/-Brain-Inflammation-Imaged-for-the-First-Time-in-Fibromyalgia
  9. Sly Saint

    “The Sexist Truth about Contested Illnesses” - podcast with Michael VanElzakker

    transcript available here:
  10. Sly Saint

    Unrest - Screenings 2018

    Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Program The Philadelphia County Medical Society will be hosting an evening program on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, featuring a screening of the documentary Unrest with a panel discussion. Wednesday, November 14...
  11. Sly Saint

    Film Gives Voice to Chronic Fatigue Patients Seeking Understanding, Treatment

    another one that does the same thing " What causes chronic fatigue? What we know, don’t know and suspect By Health Minute - November 15, 2018 Around 200,000 people in Australia suffer from a debilitating illness often branded with the unfortunate name of chronic fatigue syndrome (CFS). I say...
  12. Sly Saint

    PPS new name for MUS - Integrated Care for People with Persistent Physical Symptoms 02/10/2018

    Event in October this year: " Event Details The words ‘Integrated Care’ currently feature in every health briefing, newsletter and policy document, but what exactly does it mean and what does it look like in practice? For people with Persistent Physical Symptoms as a result of a long term...
  13. Sly Saint

    Information about NICE committee members

    Finally from ABC of MUS 'recognised criteria for CFS/ME' just which criteria is he talking about as it seems to change from one section to another? Chalder and Wessely and Sharpe for further reading, of course, who else.(don't know the Pemberton one).
  14. Sly Saint

    Information about NICE committee members

    more from ABC of MUS this shows either a lack of knowledge re ME/CFS symptoms (all of them) or he is referring to CFS when he means 'chronic fatigue'. Oxford criteria (well it would be as he has worked a lot with Sharpe). first mention of PEM but equates with post exertional fatigue...
  15. Sly Saint

    Information about NICE committee members

    re Chris Burton and the chronic fatigue issue interesting to find this: "Introduction (page 9) ‘Syndrome’ removed from chronic fatigue to more accurately reflect the inclusion criteria" Multiple Symptoms Study 3: pragmatic trial of a community based clinic for patients with persistent...
  16. Sly Saint

    The Canary: Esther McVey and her department are now totally out of control

    Esther McVey has resigned as Secretary for Work and Pensions supposedly over Brexit.
  17. Sly Saint

    Woman's fight to stop disabled people having to travel for benefit assessments - UK petition

    petition now at (drumroll please) .......... 62,856 eta: petition: " Please clamp down on Atos, Capita and Maximus and make sure they: - Don't make anyone travel for more than 90 minutes to a PIP or ESA assessment - Don't require an expensive letter from a GP to prove someone can't make the...
  18. Sly Saint

    ‘Girl in the Window’ From award-winning author Penny Joelson

    Fictional book " Girl in the Window Kasia in ‘Girl in the Window’ has M.E. and is housebound. She has not been downstairs for the last ten weeks. “Nothing ever happens on Kasia’s street. And Kasia would know, because her illness makes her spend days stuck at home, watching the world from her...
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