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  1. Sly Saint

    Government and Insurance companies - establishing the BPS model

    How ‘Drop the Disorder!’ colludes with the neoliberalism it claims to oppose The unreported 2015 meeting between the CPN, Peter Kinderman, and Dr Simon Wessely full blog here: https://drnmblog.wordpress.com/2018/05/23/how-drop-the-disorder-colludes-with-the-neoliberalism-it-claims-to-oppose/...
  2. Sly Saint

    Jaime S - #MEAction Director of Scientific and Medical Outreach

    Just got this email: " Thanks to your generous support of our Indiegogo campaign, #MEAction is adding a new team member! We’re thrilled to welcome Jaime Seltzer as our Director of Scientific and Medical Outreach. She will work with ME clinicians and researchers in order to facilitate engagement...
  3. Sly Saint

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    6448.... crawling along (bit like me at the moment)
  4. Sly Saint

    Two-Year Follow-Up of Impaired Range of Motion in Chronic Fatigue Syndrome - Peter C. Rowe ,MD +

    THE JOURNAL OF PEDIATRICS " Performing the ROM examination was more likely to provoke increased fatigue and other abnormal symptomatic responses in those with CFS (40vs 4%;P<.001).19 Subsequent work has shown that in response to a 15-minute passive straight leg raise maneuver, individuals with...
  5. Sly Saint

    Blocking glucocorticoid receptor in GWI (Klimas at #MECFSConf18)

    " Veterans told: there is no Gulf syndrome By Michael Evans, Defence Editor March 25 2006, 12:00am, The Times GULF WAR veterans suffering from illnesses since the 1991 conflict were told yesterday that, after 15 years’ research, no single cause had been found for their health problems. The...
  6. Sly Saint

    Disease-causing stomach bug attacks energy generation in host cells

    " Researchers report in a new study that the bacterium Helicobacter pylori - a major contributor to gastritis, ulcers and stomach cancer—resists the body's immune defenses by shutting down energy production within the cells of the stomach lining that serve as a barrier to infection. " The human...
  7. Sly Saint

    The great QOF (Quality and Outcomes Framework) fiasco - UK

    " QOF Fiasco 2: ’Immoral’ refusal to learn from mistakes By Jerome Burne Last week I wrote about the great QOF (Quality and Outcomes Framework) fiasco – the 30-billion-pound public health experiment involving the whole UK population without any kind of testing or pilot programs and without...
  8. Sly Saint

    Canada: OPERA MARIPOSA'S ME/FM AWARENESS RAISING& FUNDRAISING SHOW

    Opera Mariposa – Towards Tomorrow Benefit Show "Soprano and Myalgic Encephalomyelitis sufferer Jacqueline Ko presents Toward Tomorrow, a benefit show for the ME/FM Society of BC. This June, an award-winning soprano will sing to support chronic neuro-immune disease awareness. On Saturday...
  9. Sly Saint

    Personality as a risk factor for ME/CFS and similar diseases

    In contrast, this article: Overworking "*DISCLAIMER - Before you begin reading, I'd like to be very clear on something. M.E isn't the sufferers fault, nor do we know what causes it. Personally I'm betting on a problem at a cellular level. All I'm saying in this post is that there is a strange...
  10. Sly Saint

    Personality as a risk factor for ME/CFS and similar diseases

    Merged thread Why Attributing 'Type A' Personalities to Myalgic Encephalomyelitis Needs to Stop "I recently had an experience with a relative that caught me off guard. In passing, she mentioned reading somewhere that it’s mostly “type A” individuals who develop ME (myalgic encephalomyelitis)...
  11. Sly Saint

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    don't know if this has been posted NICE ME/CFS Clinical Guideline: Summary Report from Scoping Workshop by Dr Charles Shepherd | 30 May 2018 http://www.meassociation.org.uk/2018/05/nice-summary-report-scoping-workshop-30-may-2018/
  12. Sly Saint

    Action for ME - " Educate ME" -Scottish Campaign

    AfMEs ME awareness on NHS inform https://www.nhsinform.scot/campaigns/this-is-me#me-awareness-month " How long will it last? Most people with ME-CFS improve over time, although some people don't make a full recovery. It's also likely there will be periods when symptoms get better or worse...
  13. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Reply to Carol Monaghans questions: (sorry the tables went a bit squiffy.) eta: am not sure if all of this is 'biomedical' as we understand it(?) eta2: available on Hansard...
  14. Sly Saint

    Michael Sharpe skewered by @JohntheJack on Twitter

    Random question for MS ; has he seen 'Unrest', what did he think of it?
  15. Sly Saint

    S4ME Q&A with Prof Chris Ponting - Question Collection Thread

    This is not actually a question for C.P; but given his recent involvement in Geneva with IAfME (AfME) is the CMRC now part of/a member/supporter of this 'alliance'? (although the changes at the CMRC are a step in the right direction, Holgate still has ties to Simon Wessely).
  16. Sly Saint

    World ME Alliance, was previously IAFME: International Alliance for ME

    "Union for International Control (UICC)" should be 'Union for International Cancer Control (UICC)' "IAFME" or IAforME (@Andy maybe you need to change the other thread title(?)). "led by Action for M.E." just incase people didn't know. this was the 'invite' ...
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