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part 1

I'm working on a transcript.

Total misrepresentation from start to finish. eta: for those on twitter; (choose your words carefully please)

I agree; this obsession with early diagnosis is IMO flawed. I think that maybe an initial diagnosis of Post Viral fatigue (if it is following a virus/infection) and prescribing full rest (ie not just told to 'take it easy')for a few months and then reassess after that would be more prudent. But...

https://www.s4me.info/threads/backbench-business-committee-for-next-parliament-debate.6339/

This wasn't too bad until they started trying to explain the symptoms: " If you have CFS, you may have: Sore throat Fatigue Memory or concentration loss (which may come from a lack of true rest) Headaches Unrefreshing or lack of productive sleep (you get plenty of sleep but you're still...

" A disabled woman from Thamesmead has started a petition to stop people on benefits having to travel so far for assessments. Claudette Lawrence, 49, is an activist and campaigner who also suffers with myalgic encephalomyelitis (ME), which can cause extreme mental and physical exhaustion. She...

Another question : " Parliamentary questions 101k 17k 28 August 2018 E-004360-18 Question for written answer E-004360-18 to the Commission Rule 130 Rory Palmer (S&D) Subject: Myalgic encephalomyelitis: recognition by the World Health Organisation and Commission support for research and...

see this thread for #MEAction Scotlands manifesto https://www.s4me.info/threads/meaction-scotland-launch-their-manifesto.6412/#post-117148 exactly what is needed.

"Specific demands we will be making include the immediate removal of CBT/GET from the Scottish Good Practice Statement. Whilst we support the use of appropriate psychological therapy designed to support patients coping with chronic disease, we condemn the use of CBT based on the psychosocial...

see these posts https://www.s4me.info/threads/watt-from-mrc-defends-pace-in-letter-to-times.5491/page-5#post-99410 https://www.s4me.info/threads/watt-from-mrc-defends-pace-in-letter-to-times.5491/page-8#post-99590 so I'm guessing it's the latest from Moss-Morris see also...

work very well at alleviating symptoms(?) but not claiming to achieve recovery (which implies cure the underlying problem)(?) Although they changed their definition of recovery (P. White): "One recent focus of criticism has been whether CBT and GET can actually bring about recovery or...

2018 surveillance of multiple sclerosis in adults: management (NICE guideline CG186) "Recommendation 1.5.5 recommends that mindfulness‑based training, cognitive behavioural therapy or fatigue management are considered for treating MS‑related fatigue. New evidence indicates that these...

At the Back bench committee meeting a couple of days ago, one of the MPs mentioned Dr Ian Gibson (former MP) being his 'scientific advisor'. I have just been reading his witness statement to the NICE judicial review in 2007 and a lot of it is still applicable: "It is also misleading to refer...

December 13, 2018 Thursday 7:00 PM The Water Rats 328 Grays Inn Road City of London, Westminster WC1X 8BZ Bedlam2018 We're back at the Water Rats with a Christmas Party! We have refreshed with new songs. A few new faces Tenor Sax 1 and Director - Andrew Woolf Tenor Sax 2 - Helen...

Another example : "OCD is a clinically recognised disorder which affects around 1-2 per cent of the population. It is debilitating and paralysing. People with OCD experience intensely negative, repetitive and intrusive thoughts, combined with a chronic feeling of doubt or danger." "A...

" A quarter of the population claim to suffer from fatigue. But sometimes extreme tiredness can be hiding a more serious illness. It is easy to blame exhaustion on the stresses of an increasingly demanding lifestyle or work. But if after six months those feelings of exhaustion haven't gone...

ME/Chronic Fatigue Syndrome Awareness Course Price £49 inc VAT Study method Online, self-paced Duration 150 Hours Qualification 150 CPD points / hours "Overview The comprehensive, and potentially life-changing, ME/Chronic Fatigue Syndrome Awareness Diploma Course has been designed for the...

Don't know if this has been posted The news of the meeting of parliament the opportunity to ME / CFS disease and its status in Finland