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Yes that saves me from looking. I will have a play on my test system over the next few days.

I don't think that is possible. I think the best I could do is set up a group and then send alerts through the admin console (so it would need to be me sending them). Xenforo doesn't allow groups to be tagged as far as I can tell. I will try to look for an addon that may allow it.

Yes this is a new forum we started in October.

I think you meant to say do not like state intervention in parenting The left (SNP) has been putting an official state "Named Person" in for every child which for children with ME is scary https://www.theguardian.com/society/2016/jul/28/scotland-child-named-person-ruled-unlawful-supreme-court

Its very concerning but I think some of the attitudes are already institutionalized. A friend had fatigue in the early 90s and kept being dismissed by doctors it turned out to be something serious, life threatening and acute which one GP eventually picked up on and finally got treated. I think...

A big concern with these approaches is what happens if people are misdiagnosed or have other acute issues that need to be dealt with - telling people to ignore symptoms mean they get ignored and not investigated.

I have vague memories of an article about a harpist with ME appearing a year or so ago.

Even if they are connected it is irrelevant. Lord Winston is part of the medical establishment who seemed to be believing the PACE trial unconditionally and being fed what to say. I suspect now more concerns have been raised, the data has shown results were spun and there are peer reviewed...

That was just my interpretation. But it doesn't look good and I'm amazed that a modern organisation would attempt to use such an excuse. In truth I don't think the data is hard to understand and I suspect a decent data scientist could unravel it in a relatively short time. Especially in terms...

That doesn't surprise me. But their continued covering for PACE doesn't paint them in a good light. The way I see it is QMUL were the responsible institution and need to demonstrate that they are capable of an appropriate level of governance.

I took that to mean they have the raw data but the knowledge to interpret it has gone. That is a suggestion that they have not documented their database, the schemas, what the different data fields are. Either case suggest that QMUL are a highly unprofessional organisation (but that doesn't...

He should not be have the ability to do that. If that happened it would show QMUL had failed in their governance of the project.

Yes I was reading one book that talked about companies preferring arbitration than going to court because the arbitrators tend to be experts. But the ICO should be experts information so they should have more of a clue.

I think that is a requirement from the MRC now. Not sure if it was at that point. Also data sharing policies need to be set early on,

Also the costs on actiwatch are listed (and software) which they then abandoned as an outcome.

With another FoI request by @Anna Wood QMUL claimed they would need to hire a statistician to perform the task and again the ICO believed them. Once data was released it took me less than 2 hours to work out the information and that included interpreting their recovery criteria and checking the...

They have a tactical clinical trials data storage unit that cover stata and SPSS. http://www.its.qmul.ac.uk/services/catalogue/items/142820.html They also have licences for SPSS http://www.its.qmul.ac.uk/services/catalogue/items/143153.html The data was (according to the stats plan also...

I think this is a serious admission by QMUL it suggests they do not have an adaquate data management policy to support clinical trials. The spent 5m on this trial and they claim the data is so badly stored and documented that it can no longer be used. That should be considered unacceptable. The...

There could be a signalling storm where some signals in the brain disrupt a process and lead to other signals being sent out into the body to control metabolic processes etc. I've often thought of ME as a control system failure where there are lots of dynamic loops with one breaking and then...

@Simon M Any ideas on this?