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  1. Andy

    UK: The Big Give Christmas Challenge, 29th Nov - 6th Dec 2022

    "The Christmas Challenge is the UK’s biggest match-funded campaign. For seven days, the challenge offers supporters of participating charities the opportunity to double their donations — and, in doing so, make an extraordinary difference to the world’s biggest challenges."...
  2. Andy

    Long Covid in the media and social media 2022

    Long Covid highlights plight of illnesses that wax and wane "Employers are used to accommodating fixed disabilities, such as wheelchair users, but the challenge of variable illnesses has only recently come into focus" https://www.ft.com/content/0a23c4f7-154d-4f61-b323-9a4304c5d791
  3. Andy

    Effects of α-lactalbumin on strength, fatigue and psychological parameters: a randomised double-blind cross-over study 2022 Mackay-Phillips et al

    Abstract Purpose The neurotransmitter serotonin has a strong effect on behaviour and motor control. Regarding motor control, serotonin contributes to the development of fatigue and is also involved in the ability of motor neurones to operate across a large range of forces (gain control). The...
  4. Andy

    Altered sensorimotor processing in IBS: Evidence for a transdiagnostic pathomechanism in functional somatic disorders 2022 Schröder et al

    Objective: A recent hypothesis suggests that functional somatic symptoms are due to altered information processing in the brain, with rigid expectations biasing sensorimotor signal processing. First experimental results confirmed such altered processing within the affected symptom modality...
  5. Andy

    Guardian article: A catalogue of losses: what chronic fatigue took away from my life - by Mike Mariani

    He, or somebody with exactly the same name, also wrote this New Yorker: A Town for People with Chronic Fatigue Syndrome
  6. Andy

    Meditative-based diaphragmatic breathing vs. vagus nerve stimulation in the treatment of fibromyalgia—A randomized controlled trial 2022 Paccione

    Importance: Vagus nerve innervation via electrical stimulation and meditative-based diaphragmatic breathing may be promising treatment avenues for fibromyalgia. Objective: Explore and compare the treatment effectiveness of active and sham transcutaneous vagus nerve stimulation (tVNS) and...
  7. Andy

    Establishing a consensus on ME/CFS exclusionary illnesses 2022, Jason et al

    Great that patients had input, poor that it's behind a paywall.
  8. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 21st Nov. https://www.facebook.com/sci4me/posts/pfbid0212UZVeMwU3YvmaqGjkkwTUZ6UijzoJyZba7M8G7BHfXm8YmaBoabf8ntNKU5f6iBl and published papers thread https://www.facebook.com/sci4me/posts/pfbid0n39KUQZTjhbKU7udBsVdZ8FM29VmGxp3sXeQC5fGLnaZZJR8xFndiaUNyzMycUGtl
  9. Andy

    A multicenter study of bodily distress syndrome in Chinese outpatient hospital care: prevalence and associations with psychosocial variables 2022 Ma

    Abstract Background Bodily distress syndrome (BDS) is a new, empirical-based diagnosis of functional somatic symptoms. This study aimed to explore the prevalence of BDS and its association with psychosocial variables in a Chinese clinical population. Methods A multicentre cross-sectional...
  10. Andy

    Mental Fatigue, Activities of Daily Living, Sick Leave and Functional Status among Patients with Long COVID: A Cross-Sectional Study 2022 Nielsen et a

    Abstract Studies suggest that persistent symptoms after COVID-19 (long COVID) influence functioning and activities of daily living (ADL). However, it is still uncertain how and to what extent. This study aimed to describe patient-reported mental fatigue, ADL problems, ADL ability, sick leave...
  11. Andy

    The Feasibility and Impact of Practising Online Forest Bathing to Improve Anxiety, Rumination, Social Connection and Long-COVID Symptoms: 2022 McEwan

    Abstract Background: Long-COVID affects over 144 million people globally. In the absence of treatments, there is a need to establish the efficacy of therapies that improve patient outcomes. Forest bathing has been demonstrated to improve physical and mental outcomes but there is no evidence in...
  12. Andy

    National long COVID impact and risk factors 2022 Baruch et al

    Abstract Objective Our objective was to estimate the prevalence and risk factors for long COVID symptoms among polymerase chain reaction–confirmed COVID-19 patients (hospitalised and community) in Malta. Study design This was a national cross-sectional survey among COVID-19 patients in Malta...
  13. Andy

    Undiagnosed Long COVID in China Among Non-vaccinated Individuals: Identifying Persistent Symptoms & Impacts on Patients' Health-Related QoL 2022 Zhang

    Abstract Is Long COVID-19 under-diagnosed? The definition of this new condition has received many contributions, and it is still under development as a great variety of symptoms have been associated to it. This study explores the possibility that there are non-diagnosed cases among individuals...
  14. Andy

    Paucity of ME/CFS research in 2022

    Someone on Reddit looked at number of publications per year and their research indicates a significant increase in 2020 and 2021, with what looks to be a return to previous levels this year. https://www.reddit.com/r/cfs/comments/xdd8m6/update_evolution_of_research_on_mecfs_details_in/
  15. Andy

    Autoantibodies against SUMO1-DHX35 in long-COVID 2022 Thurner et al

    Highlights • IgG autoantobodies against SUMO1-DHX35 occur in a subset of patients with long-COVID. • Lysine 53 was identified as SUMOylation site of DHX35 • SUMOylation of DHX-35 is a necessary prerequisite for reactivity of autoantibodies Abstract Long COVID is a collection of symptoms as a...
  16. Andy

    The prevalence of stigma in a UK community survey of people with lived experience of long COVID 2022 Pantelic et al

    Abstract Background Stigma can be experienced as perceived or actual disqualification from social and institutional acceptance on the basis of one or more physical, health-related, behavioural, or other attributes deemed to be undesirable. Long COVID is a predominantly multisystem condition...
  17. Andy

    Neuropsychiatric Consequences of COVID-19 Pandemic: A Synthetic Review from a Global Perspective 2022 Pandi-Perumal et al

    Some research suggests that distress, secondary to isolation and fear following COVID-19 infection, can negatively affect the long-term more than the COVID-19 infection itself. This narrative review aims to provide a global view on the neuropsychiatric consequences of COVID-19 that can be...
  18. Andy

    Is SARS-CoV-2 the only cause of long-COVID? 2022, de Mendoza et al

    Paywall, https://www.aidsreviews.com/resumen.php?id=1616
  19. Andy

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    There are those options but I think there would be value in the ability to record the perceived capacity for exertion in the morning and then use the exertion ratings in the evening to see if they match or not. This could then help give the user confirmation on whether their perception of...
  20. Andy

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    Just downloaded it, and I like the fact that you can choose what you want to track. However, instead of tracking fatigue, I want to track energy (or even more precisely 'capacity for exertion'). I appreciate that they can be seen as two sides of the same coin but the distinction is important to...
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