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Full title: Predictors of Male Sexual Dysfunction in Urologic Chronic Pelvic Pain Syndrome (UCPPS), Other Chronic Pain Syndromes, and Healthy Controls in the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network Abstract Background Sexual dysfunction (SD)...

Abstract About one out of eight people to convalesce from COVID-19 suffer from the so called Long COVID, a syndrome of non-specific symptoms with unclear pathogenesis. In a recent study published in Cell Long COVID participants reporting respiratory symptoms had low cortisol levels. In an as...

The Canadian government, https://www.chairs-chaires.gc.ca/home-accueil-eng.aspx

From the homepage, https://www.comet-initiative.org/ "A core outcome set (COS) is an agreed standardised set of outcomes that should be measured and reported, as a minimum, in all clinical trials in specific areas of health or health care." which obviously could be a sensible and useful list...

Importance: Chronic, non-cancer pain affects approximately 20-30% of the population in North America, Europe, and Australia, with surgery and trauma frequently cited as inciting events. Prospective studies of fracture patients have demonstrated an association between somatic pre-occupation, poor...

Yeah, I thought her condemnation was pretty weak. Also frustrating to see her use CFS/ME.

As Medical Advisor to the NZ ME Association (ANZMES) and having worked in this area of medicine for 40 years, I am concerned that recent GP educational events have promoted ‘The Lightning Process’,1,2 predominantly used for treatment of chronic fatigue syndrome/myalgic encephalomyelitis...

Thought I recognised Jason Busse from somewhere BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group and here it is reported they were recruiting for this on Reddit, News from Canada

Spotted the above following @Caroline Struthers tweeting about

Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) a long-term, complex, debilitating disorder associated with poor health-related quality of life and declined functional status for individuals and a significant economic burden on society. CFS/ME is defined by symptoms and patient’s...

A combination of the energy crisis and, specifically to the UK, a weaker pound will make hitting the target this time a challenge, although hopefully Long Covid folks can see that funding Dave is an investment.

"As in previous years, October is crowdfunding month at the University of California, Berkeley, and I am once again seeking funds to continue my work on ME, ME/CFS, “medically unexplained symptoms,” and now long Covid. These tax-deductible donations to Berkeley will support my academic position...

For reference, here is our discussion thread on the process that lead to this publication, UK: Priority Setting Partnership for ME/CFS

Post on Reddit. "TLDR: BC007 is being delayed a bit, likely until November or at worst early 2023. BC have done some good proof of concept studies for BC007, but not enough to get investors now. They are worried Erlangen will fuck the study up by including ME/CFS patients so they demanded they...

In my opinion, in reference to PEM, we also need even more basic stuff than described above, which would be to ask large numbers of pwME to simply describe what PEM is to them. You only need to look at the discussions around PEM here on the forum to see that while there is broad agreement, there...

Part two of ME Research UK's coverage, https://www.meresearch.org.uk/genetics-research-symposium-part-2/

Latest quick blog, "DecodeME Questionnaire – Shining a light on the ME/CFS community", https://www.decodeme.org.uk/decodeme-questionnaire-shining-a-light-on-the-me-cfs-community/

First batch is going out early next week. The strikes by the postal workers today and tomorrow may mean a short delay for delivery though. We've been advised that the size of the packing used should fit in standard sized letterboxes.

Purpose: The aim of this study was to investigate the reported persistent or new symptoms 1 year after a single dose of 200,000 IU of vitamin D3 and hospitalization in patients with moderate to severe COVID-19. Methods: This is a post-hoc, exploratory analysis from a multicenter, double-blind...

Abstract Background Functional Neurological Disorders (FND) are common in clinical practice. It is recognized that FND may present at onset or during the course of other neurological diseases (functional comorbidity). Cases We report a clinical series of three patients who initially presented...