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Webinar recording and transcript – Taking part in DecodeME – 16th November 2022 webinar. https://www.decodeme.org.uk/webinar-recording-and-transcript-taking-part-in-decodeme/ Some initial data from the questionnaire. "Over 90% of you report brain fog; nearly 90% of you say that your symptoms...

Abstract Conversion disorder (CD) is a psychological disease that presents as neurologic symptoms. This diagnosis of exclusion can include symptoms such as paralysis, blindness, non-epileptic seizures, and movement disorders. We describe a case of a healthy 39-year-old woman who underwent a...

Abstract The role of autoimmunity in post-acute sequelae of COVID-19 (PASC) is not well explored, although clinicians observe a growing population of convalescent COVID-19 patients with manifestation of post-acute sequelae of COVID-19. We analyzed the immune response in 40 post-acute sequelae...

My opinion is that physical capabilities (or lack of) are, relatively, an easier and more relatable subject for people to write about. Additionally, there must be the factor that those who are more disabled by cognitive dysfunction find it harder to write about and otherwise explain how...

Trial By Error: Top Lightning Process Proponent Privately Lobbied for Approval of Norway’s LP Study "Dr Signe Flottorp is a promoter of the Lightning Process for ME/CFS as well as the research director at the Norwegian Institute of Public Health. That’s a scary combination! Dr Flottorp, a...

Abstract Objective: The aim: To perform an overall assessment of BP and BP variability using ambulatory measurements in young adults with long COVID syndrome. Patients and methods: Materials and methods: We enrolled young patients with diagnosed long-COVID syndrome (n = 58, mean age 23.07 ±...

Abstract Background There is a need for further understanding pediatric long COVID syndrome (LCS) to be able to create specific case definitions and guidelines for providing good clinical care. Methods Medical records of all LCS patients who presented at our designated LC clinic were...

Highlights Longitudinal assessment of COVID-19-related cognitive symptoms was performed. Cognitive alterations may extend beyond 1 year after the acute phase. Several borderline scores in memory and executive tests were detected. Longitudinal improvements were observed in several cognitive...

Still causing harm. Included in this Fatigue, post-exertional malaise and orthostatic intolerance: a map of Cochrane evidence relevant to rehabilitation for people with... 2022 Arienti

Full title: Fatigue, post-exertional malaise and orthostatic intolerance: a map of Cochrane evidence relevant to rehabilitation for people with post COVID-19 condition INTRODUCTION: Rehabilitation focuses on impairments, activity limitations and participation restrictions being informed by the...

Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is characterized by persistent physical and mental fatigue. The post-COVID-19 condition patients refer physical fatigue and cognitive impairment sequelae. Given the similarity between both conditions, could it be...

The update that Charles gave on it in 2012 can be read here, https://meassociation.org.uk/2012/08/update-on-the-mecfs-tissue-and-post-mortem-tissue-bank-me-association-24-august-2012/

"From all of us at Action for M.E., we want to say a big THANK YOU to everyone who donated & supported our @BigGive #ChrsitmasChallenge22 this year! Thanks to your amazing generosity, we've raised £125,610 online, enabling us to continue to support #pwME!"

Thread here, Considerations in establishing a post-mortem brain and tissue bank for the study of ME/CFS: a proposed protocol, 2014, Nacul et al

Full title: Cochrane “evidence relevant to” rehabilitation of people with post COVID-19 condition. What it is and how it has been mapped to inform the development of the World Health Organization recommendations Cochrane Rehabilitation developed a series of actions to provide the global...

Trial By Error: Recent Articles in The Guardian, CNBC and Popular Science https://www.virology.ws/2022/12/06/trial-by-error-recent-articles-in-the-guardian-cnbc-and-popular-science/

News in Brief posts for w/c 28th Nov. https://www.facebook.com/sci4me/posts/pfbid02ciLchvcMQxJ9TRfHKGJ4Q1tcoQELoq1RMr1Dvyrpykneo44QckUjW4dLw6e6AndMl and published papers thread. https://www.facebook.com/sci4me/posts/pfbid02Gfjuwu37GLAWx3J61nc5bLcUZVvDcnrXBSdxGgbwXyi8TLnmpLMUnZwUmX9Vb1xl

I can confirm this from having met her multiple times when working with the ME/CFS Biobank team.

Highlights We validated the GAD-7 anxiety scale in adults with dissociative seizures (DS). We found high internal consistency for the GAD-7 in adults with DS. Factor Analysis indicated one main factor and measurement invariance for the GAD-7. GAD-7 has weak diagnostic utility for generalised...

Abstract Curtailing elite sports during the coronavirus disease 2019 (COVID-19) pandemic was necessary to prevent widespread viral transmission. Now that elite sport and international competitions have been largely restored, there is still a need to devise appropriate screening and management...