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  1. TiredSam

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I vaguely remember that Hammond's Private Eye articles are usually not so bad. Then he goes and writes horrendous drivel somewhere else. I wonder if there's a reason for that?
  2. TiredSam

    News from Germany

    From part 7 of my blog (just reading it again for a trip down memory lane ...)
  3. TiredSam

    News from Germany

    My 13-part blog series on my trip to the Charite in Berlin: https://forums.phoenixrising.me/blog-articles/blog/tiredsam.20476/ It is Scheibenbogen's place. I personally decided that there was no other option than going to the Charite, if they hadn't seen me I wouldn't have gone anywhere...
  4. TiredSam

    What we're not being told about ME - UnHerd (Tom Chivers)

    That's hardly an example of anything. Within a couple of hours of posting those lofty sentiments: VES tweeted the following angry and over-confident message in a knee-jerk reaction to the latest NICE email.: I'm sure many of us, myself included, saw the NICE email and thought "Fuck this...
  5. TiredSam

    What we're not being told about ME - UnHerd (Tom Chivers)

    He'd only have make the effort to get to grips with it properly once, then he could have a string of articles out of it. Precisely.
  6. TiredSam

    What we're not being told about ME - UnHerd (Tom Chivers)

    Sorry but I'm sick of ME tourists passing by, thinking they'll have a go, then dumping all over the place and buggering off again. Researchers, journalists, charletans of every persuasion, wannabe saviours, sick of the lot of them. I should probably have some porridge.
  7. TiredSam

    What we're not being told about ME - UnHerd (Tom Chivers)

    How do we know he was paid 3 days to work on it? I have a living to earn, and I've spent more than 3 days unpaid preparing for things in the past, it's a question of how much pride you take in your work, whether you can be arsed doing a proper job. I loved his first article, but this second one...
  8. TiredSam

    What we're not being told about ME - UnHerd (Tom Chivers)

    If that's investigative journalism ... Yes, that's why it's crying out for a decent investigative journalist to get to the bottom of it. How do you know? So what is it exactly that you do Tom? Jesus, the guy looks at it for 3 days, shrugs and gives up. And that's his "best shot". Bye then...
  9. TiredSam

    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    Once you have rested and start to feel better, it is very hard to understand that you can't start building up slowly again from there.
  10. TiredSam

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Getting some high-level signatories now: Priti Patel signed one minute ago.
  11. TiredSam

    Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times (Sean O'Neill)

    Well, we've come a long way from ME articles dictated by the SMC or written by the likes of Rod Liddle. Then we had more ME-friendly articles written about Beverley the Belly Dancer and her ilk, usually celebrating how they had improved and ending with the contact details of a modelling agency...
  12. TiredSam

    Jennie Jacques on living with ME: ‘I am a shadow of my former self physically’ , The Times (Sean O'Neill)

    I can see why journalists and even first-person accounts emphasise how active and positive their subject was before getting ME, in order to contrast it with how inactive they are now. I've done it myself when writing about how super fit and active I was before ME. But an unfortunate side-effect...
  13. TiredSam

    Questioning Biomedicine’s Privileging of Disease and Measurability, 2021, Kroll

    Ha! Excuse me wittering on to myself on this thread, but I'm proud to say I've just discovered that I called it 100% correctly. I just clicked on the link in the OP to look at the paper, and skimming over it I found this: The phrase "medical gaze" is straight out of Foucault, and in this paper...
  14. TiredSam

    Questioning Biomedicine’s Privileging of Disease and Measurability, 2021, Kroll

    I can tell just by the language used that whoever wrote this has been influenced directly or indirectly (by which I mean taught the ideas without knowing where they came from) by Michel Foucault's idea of science as a tool of power to oppress. This random youtube video I just found gives a rough...
  15. TiredSam

    Questioning Biomedicine’s Privileging of Disease and Measurability, 2021, Kroll

    From the first sentence I knew exactly where this was coming from. And the following: Confirmed it. I've only recently come to learn how "anti-science" the ideologies rooted in post modernism are. Science is only one type of knowledge production, which historically has been wrongly privileged...
  16. TiredSam

    Royal London Hospital for Integrated Medicine: Physiotherapy for Chronic Fatigue (CFS), Aug 5 2021

    I learnt when my kids were very small, that when everything went quiet it usually meant they were up to something.
  17. TiredSam

    WORLD EVIDENCE-BASED HEALTHCARE DAY 20 October 2021

    I'll be awaiting developments before deciding whether to get my flags out on 20th October.
  18. TiredSam

    Clare Gerada: influence on UK medical practice and ME/CFS management

    Do you mind? Imagining what those two sound like laughing together is quite unsettling.
  19. TiredSam

    Kickstarter: "The ME Generation (Issue One), A super heroic adventure!"

    Superhero with ME? What a strange concept.
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