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I agree. In the Healthinfo document, subheadings have been translated into Maori. One of the subheadings is Whakatau me tiaki ake i a koe i te ME/CFS Diagnosis and self-care for ME/CFS So, they used the disease name of ME/CFS, although inconsistently. Using ME/CFS seems like a good way to go...

A study about platelet volume in a large sample of women diagnosed with fibromyalgia by Indian researchers. ...Relation Between [FM] Severity and Neutrophil-to-Lymphocyte Ratio, Platelet-to-Lymphocyte Ratio, and Mean Platelet Volume, 2022, Jayakrishnan et al

A thread for news about ME/CFS and associated illnesses in India.

The correlation coefficient is -0.31. I'm assuming that's the slope of a regression line. That is, reported fibromyalgia impact is very slightly more likely to be higher with a lower mean platelet value. Yes, the p value is good at 0.004, BUT... Seriously No, on the basis of this study, it...

Thanks @Ravn, yes, I suspect you are correct. No. Just a 'qualified Maori translator'. The HealthInfo people are now discussing it with with the Te Reo Komiti (Maori Language Committee) of the main hospital here. We'll see how things go. If it is just a (bad) transliteration, there's a...

I've recently come across the problem of a name for ME/CFS in the Maori language seemingly being created by a translator to be the equivalent of 'chronic fatigue' but using an uncommon word for 'chronic' that can also mean loitering and shirking. (discussed here News from Aotearoa/New Zealand...

She's part of CureME https://cureme.lshtm.ac.uk/about-us/cureme-team/ and co-authored this paper Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

Antidepressant withdrawal syndrome and its management (slide presentation), 2022, Horowitz An information-rich presentation about the problems of withdrawal from anti-depressants.

It's great that there is a much better understanding of this issue now, but there must have been a lot of people whose lives were made much harder, or who even suicided, as a result of the faulty information that anti-depressants could always be stopped in less than a month and that side effects...

That's a very clear pack of slides about an important topic. Hopefully a better understanding of the difficulty people can have withdrawing from antidepressants will stop doctors from prescribing these drugs to whoever comes through their door appearing a bit sad. Info from the slides: The...

I did the assessment. I think it's a mass of holistic junk. I mean, some of the questions it asks should be asked by a good doctor when making a diagnosis, but .... I was diagnosed with likely SIBO and possible ongoing EBV or other viral illness and mould exposure. It doesn't get us very...

The Maori name for ME/CFS You might remember that I was working on some ME/CFS information provided online to the public for a regional health board. That's going well and most of the changes I was keen to see have been made. But, the new version includes a Maori name for ME/CFS, given as...

Can anyone recall, have we seen much in the way of good evidence that immune adsorption from plasma helps? Or anything about proteasome inhibitors? I think this is the paper referred to in the CRISTIN description Pathomechanisms and possible interventions in myalgic encephalomyelitis/chronic...

This is interesting in itself, but also really important for studies of brain temperature in people with ME/CFS. I think we've seen evidence of daily (and for women, fertility-related) cycles in all sorts of things that have been measured in ME/CFS studies. Researchers need to control for...

Good article exploring the links between Long Covid and ME/CFS, by a Spanish author.

It's a good question but I have little confidence that this is a good way to answer it. There's too much variation in approaches to diagnosis. The question probably can't be answered until we have a better idea of what ME/CFS and fibromyalgia actually are. Interesting that this paper is from...

I've made a thread for that 2006 paper - it's a small CFS study but relevant to the discussion. Is chronic fatigue syndrome associated with platelet activation?, 2006, Kennedy et al It concluded:

Note - from 2006 https://pubmed.ncbi.nlm.nih.gov/16479189/ Abstract Chronic fatigue syndrome (CFS) is a debilitating condition that has no known aetiology or pathophysiology. Recent investigations by other workers have suggested that individuals with CFS may have a hypercoagulable state. This...

Sadly not open access - sounds interesting. So, could ME/CFS be one or some of 1. sickness behaviour caused by a smouldering infection triggering the VMPOLPS cells, 2. sickness behaviour caused by VMPOLPS cells being abnormally sensitive, so every little pathogen challenge (such as a leaky gut...

One question I had was Is the size of the masses identified as possibly microclots by Martin's team compatible with the size of the microclots identified by Pretorius' team? I think they are. Here's a picture of what has been identified as microclots in Long Covid blood by Pretorius Note the...